SHARE AND CARE COCKAYNE SYNDROME NETWORK INC
EIN 01-0557037 · Birth Defects & Genetic Diseases (G20)
What they do
GOOD GRIEF IS A PRIVATE FACEBOOK GROUP, FACILITATED BY A BEREAVED PARENT WHO HAS BEEN TRAINED IN COUNSELING, AND CREATED FOR BEREAVED PARENTS WHERE THEY CAN PROVIDE PEER-TO-PEER SUPPORT. WE HOLD GRIEF SUPPORT MEETINGS OVER ZOOM AND A LIVE BUTTERFLY RELEASE DURING OUR CONFERENCES TO REMEMBER ALL OF THE CHILDREN WHO HAVE PASSED AWAY AS WELL AS THE JOURNEY OF THEIR LIVES. COCKAYNE SYNDROME AND TRICHOTHIODYSTROPHY AWARENESS MONTH OF JULY IS A TIME FOR ALL FAMILIES AROUND THE WORLD TO CELEBRATE THEIR SPECIAL CHILDREN. AWARENESS IS THE COMMON THREAD WOVEN THROUGH ALL THE SCCS NETWORK PROGRAMS. OUR GOAL IS TO RAISE AWARENESS AND TO REACH OUT TO THE MEDICAL AND RESEARCH COMMUNITIES FOR THEIR SUPPORT AND THE ADVANCEMENT OF RESEARCH AND CLINICAL CARE THAT WOULD BENEFIT INDIVIDUALS AFFECTED BY THE COCKAYNE SYNDROME. SCCS IS COMMITTED TO PROVIDING INFORMATION TO HELP UNDERSTAND CS BETTER AND WE DO THAT USING PUBLICATIONS OUR WEBSITE AND ALL OUR SOCIAL MEDIA ACCOUNTS (FACEBOOK TWITTER AND INSTAGRA
Should I give to this charity?
Of every $100 spent, about $81.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders1 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
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Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.
Has the pattern changed?
Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (1)
JACQUELINE ARIASPRINCIPAL OFFICER
About this charity
- Recognized since
- January 2002
- Location
- PO BOX 282, WATERFORD, VA 20197-0282
- County
- Loudoun
- In care of
- Jacqueline Clark
- Primary officer
- Jacqueline Arias
How to reach them
Filing and classification
- Latest tax year
- 2025
- Tax period began
- January 1, 2025
- Return type
- 990EZ
- NTEE classification
- Birth Defects & Genetic Diseases (G20)
- IRS tax category
- Birth Defects & Genetic Diseases