SHARE AND CARE COCKAYNE SYNDROME NETWORK INC
EIN 01-0557037 · Birth Defects & Genetic Diseases (G20)
What they do
GOOD GRIEF IS A PRIVATE FACEBOOK GROUP, FACILITATED BY A BEREAVED PARENT WHO HAS BEEN TRAINED IN COUNSELING, AND CREATED FOR BEREAVED PARENTS WHERE THEY CAN PROVIDE PEER-TO-PEER SUPPORT. WE HOLD GRIEF SUPPORT MEETINGS OVER ZOOM AND A LIVE BUTTERFLY RELEASE DURING OUR CONFERENCES TO REMEMBER ALL OF THE CHILDREN WHO HAVE PASSED AWAY AS WELL AS THE JOURNEY OF THEIR LIVES. COCKAYNE SYNDROME AND TRICHOTHIODYSTROPHY AWARENESS MONTH OF JULY IS A TIME FOR ALL FAMILIES AROUND THE WORLD TO CELEBRATE THEIR SPECIAL CHILDREN. AWARENESS IS THE COMMON THREAD WOVEN THROUGH ALL THE SCCS NETWORK PROGRAMS. OUR GOAL IS TO RAISE AWARENESS AND TO REACH OUT TO THE MEDICAL AND RESEARCH COMMUNITIES FOR THEIR SUPPORT AND THE ADVANCEMENT OF RESEARCH AND CLINICAL CARE THAT WOULD BENEFIT INDIVIDUALS AFFECTED BY THE COCKAYNE SYNDROME. SCCS IS COMMITTED TO PROVIDING INFORMATION TO HELP UNDERSTAND CS BETTER AND WE DO THAT USING PUBLICATIONS OUR WEBSITE AND ALL OUR SOCIAL MEDIA ACCOUNTS (FACEBOOK TWITTER AND INSTAGRA
Should I give to this charity?
Of every $100 spent, about $81.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders1 people are listed in the latest report.
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Financial picture
A quick look at the charity’s latest reported finances. The available records are too limited for us to sell a complete report.
How reported expenses were divided
This free view shows the broad spending mix. Exact dollar amounts and revenue comparisons are included in the complete report.
Mission work is the Form 990 category called program services. These are the organization’s reported accounting categories, not an independent measure of results.
About this charity
- Recognized since
- January 2002
- Location
- PO BOX 282, WATERFORD, VA 20197-0282
- County
- Loudoun
- In care of
- Jacqueline Clark