ADULT CONGENITAL HEART ASSOCIATION Charity Report

Public IRS 990 nonprofit record

ADULT CONGENITAL HEART ASSOCIATION

EIN 04-3447959 · Heart & Circulatory System Diseases & Disorders (G43)

What they do

to EMPOWER THE CONGENITAL HEART DISEASE (CHD) COMMUNITY BY ADVANCING ACCESS to RESOURCES and SPECIALIZED CARE THAT IMPROVE PATIENT-CENTERED OUTCOMES.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $72.10 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders26 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

85.68%of revenue went to mission work72.1% of expenses · Program services

17.15%of revenue went to fundraising14.4% of expenses

$125.27spent for every $100 of revenueSpending was higher than revenue this year.

16.05%of revenue went to management and office costs13.5% of expenses

$0.89in assets for every $1 spent this yearSome assets cannot be spent right away.

94.9%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $469,682 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $185,153 for MARK ROEDER (PRESIDENT AND CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$1,958,729

Mission workProgram services$1,678,29485.68% of revenue72.1% of expenses

ManagementOffice and general costs$314,45416.05% of revenue13.5% of expenses

FundraisingAsking for donations$335,88117.15% of revenue14.4% of expenses

Total expenses$2,328,629118.88% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 72.1% mission · 13.5% management · 14.4% fundraisingTotal expenses: 118.88% of revenue

2023Expense mix: 72.0% mission · 12.9% management · 15.1% fundraisingTotal expenses: 82.67% of revenue

2022Expense mix: 74.6% mission · 13.2% management · 12.2% fundraisingTotal expenses: 118.21% of revenue

2021Expense mix: 67.3% mission · 15.0% management · 17.8% fundraisingTotal expenses: 77.55% of revenue

2020Expense mix: 68.4% mission · 15.0% management · 16.7% fundraisingTotal expenses: 105.06% of revenue

2019Expense mix: 73.6% mission · 10.6% management · 15.7% fundraisingTotal expenses: 94.12% of revenue

2018Expense mix: 70.5% mission · 7.1% management · 22.5% fundraisingTotal expenses: 118.52% of revenue

2017Expense mix: 70.7% mission · 9.9% management · 19.4% fundraisingTotal expenses: 96.39% of revenue

Money in and money out

Revenue$1,858,947

Expenses$2,328,629

Annual shortfall $469,682 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$1,678,294 · 72.1% of expenses

Management and office costs$314,454 · 13.5% of expenses

Fundraising$335,881 · 14.4% of expenses

See all reported dollar amounts

Revenue$1,858,947

Expenses$2,328,629

Assets$2,080,624

Income$1,858,947

Contributions$1,764,509

Mission work (program services)$1,678,294

Fundraising$335,881

Grants given$650,000

Average grant$28,261

Management and general$314,454

Executive compensation (total)$289,150

Stocks and bonds$498,848

Accounting fees$23,813

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

MARK ROEDERPRESIDENT AND CEO · 50 hrs/week $185,153Base $171,963 · Other $13,190

JENNIFER HOCKENHULLDIRECTOR OF FINANCE · 40 hrs/week $137,643Base $127,961 · Other $9,682

DANIELLE HILESR. DIRECTOR OF MEDICAL AFFAIRS · 40 hrs/week $128,333Base $116,166 · Other $12,167

KERRY WEVODAUDIRECTOR OF WALK FOR 1 IN 100 · 40 hrs/week $115,134Base $104,868 · Other $10,266

JANINE GUGLIELMINODIR. OF PATIENT RESOURCES & ADVOCACY · 40 hrs/week $103,989Base $100,960 · Other $3,029

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (26)

MARK ROEDERPRESIDENT AND CEO

JENNIFER HOCKENHULLDIRECTOR OF FINANCE

DANIELLE HILESR. DIRECTOR OF MEDICAL AFFAIRS

KERRY WEVODAUDIRECTOR OF WALK FOR 1 IN 100

JANINE GUGLIELMINODIR. OF PATIENT RESOURCES & ADVOCACY

YULI KIM MDBOARD MEMBER

ANNE STAPLETON-REILLYBOARD MEMBER

WILLIAM CAUSEYSECRETARY

WILLIAM BROWNETREASURER

TIM SINGLETARYBOARD MEMBER

STEPHEN BACKVICE CHAIR

RICHARD KRASUSKI MDBOARD MEMBER

NICOLE JUNGBOARD MEMBER

MEREDITH RAHN-OAKESBOARD MEMBER

MATT MARTINHOBOARD MEMBER

MARY JANE EAZERSECRETARY UNTIL 9/30/24

KRISTI RYANBOARD MEMBER

JONATHAN CRAMER MDBOARD MEMBER

JOANNE NICHOLSBOARD MEMBER UNTIL 8/30/2024

JENNIFER CORTESBOARD MEMBER

JAMES RUPPEL MD MSCHAIR

ERIN WALSH-BEGUINBOARD MEMBER

CYNTHIA FELIX JEFFERSBOARD MEMBER UNTIL 12/9/24

CLAUDIA NORMANBOARD MEMBER

CHAD CHASEBOARD MEMBER

BINTA BAUDYBOARD MEMBER

About this charity

Recognized since: January 1999
Location: 5950 SYMPHONY WOODS RD STE 212, COLUMBIA, MD 21044-3589
County: Delaware
In care of: MARK ROEDER
Primary officer: MARK ROEDER, PRESIDENT AND CEO

How to reach them

WebsiteVisit the charity’s website Emailinfo@achaheart.org Phone(215) 849-1260

Filing and classification

Latest tax year: 2024
Tax period began: January 1, 2024
Return type: 990
Tax preparer: CLIFTONLARSONALLEN LLP
NTEE classification: Heart & Circulatory System Diseases & Disorders (G43)
IRS tax category: Heart & Circulatory System Diseases & Disorders
Grant-giving organization: Yes