NATIONAL DOWN SYNDROME SOCIETY Charity Report

Public IRS 990 nonprofit record

NATIONAL DOWN SYNDROME SOCIETY

EIN 13-2992567 · Down Syndrome (G25)

What they do

The National Down Syndrome Society Empowers Individuals With Down Syndrome and Their Families By Driving Policy Change, Providing Resources, Engaging With Local Communities, and Shifting Public Perceptions.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $80.30 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders26 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

97.69%of revenue went to mission work80.3% of expenses · Program services

15.33%of revenue went to fundraising12.6% of expenses

$121.66spent for every $100 of revenueSpending was higher than revenue this year.

8.64%of revenue went to management and office costs7.1% of expenses

$2.16in assets for every $1 spent this yearSome assets cannot be spent right away.

67.5%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $1,018,415 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $239,048 for KANDI PICKARD (PRESIDENT & CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$4,702,778

Mission workProgram services$4,593,93297.69% of revenue80.3% of expenses

ManagementOffice and general costs$406,2818.64% of revenue7.1% of expenses

FundraisingAsking for donations$720,98015.33% of revenue12.6% of expenses

Total expenses$5,721,193121.66% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 80.3% mission · 7.1% management · 12.6% fundraisingTotal expenses: 121.66% of revenue

2023Expense mix: 79.5% mission · 8.7% management · 11.7% fundraisingTotal expenses: 131.42% of revenue

2022Expense mix: 79.6% mission · 10.4% management · 10.0% fundraisingTotal expenses: 124.05% of revenue

2021Expense mix: 74.7% mission · 13.8% management · 11.5% fundraisingTotal expenses: 92.86% of revenue

2020Expense mix: 78.0% mission · 11.3% management · 10.7% fundraisingTotal expenses: 76.89% of revenue

2019Expense mix: 75.0% mission · 9.3% management · 15.7% fundraisingTotal expenses: 88.42% of revenue

Money in and money out

Revenue$4,702,778

Expenses$5,721,193

Annual shortfall $1,018,415 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$4,593,932 · 80.3% of expenses

Management and office costs$406,281 · 7.1% of expenses

Fundraising$720,980 · 12.6% of expenses

See all reported dollar amounts

Revenue$4,702,778

Expenses$5,721,193

Assets$12,363,529

Income$7,120,560

Contributions$3,173,086

Mission work (program services)$4,593,932

Fundraising$720,980

Grants given$324,200

Average grant$81,050

Management and general$406,281

Executive compensation (total)$271,059

Stocks and bonds$10,984,068

Accounting fees$188,915

Investing fees$30,000

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

KANDI PICKARDPRESIDENT & CEO · 40 hrs/week $239,048Base $197,048 · Other $42,000

ROBERT SNOWDISABILITY ADV · 40 hrs/week $145,001Base $97,251 · Other $47,750

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (26)

KANDI PICKARDPRESIDENT & CEO

ROBERT SNOWDISABILITY ADV

KERRY SETTEDIRECTOR

VICTORIA TREMONTIDIRECTOR

THOMAS WARNERVICE PRESIDENT

THOMAS SANTOSDIRECTOR

SCHUNDA MURPHYDIRECTOR

ROBERT SIEGELDIRECTOR

MISTY HOLMESDIRECTOR

MICHAEL KULMADIRECTOR

MARK JOHNSONDIRECTOR

MARJORIE SHAVERSDIRECTOR

LISA PELHAMDIRECTOR

LAUREN WANGDIRECTOR

C MITCH TAYLORDIRECTOR

JOHN SHORTTREASURER

JOHN MCGUIREDIRECTOR

JOHN CRONINDIRECTOR

JOE JOYCEDIRECTOR

JANET EISSENSTATSECRETARY

ELIZABETH F GOODWINDIRECTOR

DEBBIE MORRISDIRECTOR

COURTNEY GAINESDIRECTOR

CIARA SIEGELDIRECTOR

CARLO P FRAPPOLLICHAIRMAN

CANDACE WHITINGDIRECTOR

About this charity

Recognized since: January 1979
Location: 8 E 41ST STREET 8TH FLOOR, NEW YORK, NY 10017-6290
County: District of Columbia
In care of: John Short
Primary officer: John Short, Treasurer

How to reach them

WebsiteVisit the charity’s website Phone(800) 221-4602

Filing and classification

Latest tax year: 2024
Tax period began: July 1, 2024
Return type: 990
Tax preparer: C E A SCHOLTES AND ASSOCIATES
NTEE classification: Down Syndrome (G25)
IRS tax category: Down Syndrome
Grant-giving organization: Yes