AMYOTROPHIC LATERAL SCLEROSIS ASSN Charity Report

Public IRS 990 nonprofit record

AMYOTROPHIC LATERAL SCLEROSIS ASSN

EIN 13-3271855 · Diseases, Disorders & Medical Disciplines (G500)

What they do

LEADING THE FIGHT to CURE and TREAT ALS THROUGH RESEARCH, ADVOCACY and CARE SERVICES.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $67.40 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders43 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

83.83%of revenue went to mission work67.4% of expenses · Program services

30.76%of revenue went to fundraising24.7% of expenses

$124.30spent for every $100 of revenueSpending was higher than revenue this year.

9.70%of revenue went to management and office costs7.8% of expenses

$3.86in assets for every $1 spent this yearSome assets cannot be spent right away.

96.9%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $5,087,583 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $351,930 for PATRICK REEDY (CHIEF DEVELOPMENT OFFICER). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$20,939,101

Mission workProgram services$17,553,33283.83% of revenue67.4% of expenses

ManagementOffice and general costs$2,032,0939.70% of revenue7.8% of expenses

FundraisingAsking for donations$6,441,25930.76% of revenue24.7% of expenses

Total expenses$26,026,684124.30% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 67.4% mission · 7.8% management · 24.7% fundraisingTotal expenses: 124.30% of revenue

2023Expense mix: 66.7% mission · 9.6% management · 23.7% fundraisingTotal expenses: 78.16% of revenue

2022Expense mix: 63.1% mission · 10.7% management · 26.2% fundraisingTotal expenses: 151.53% of revenue

2021Expense mix: 70.7% mission · 10.5% management · 18.8% fundraisingTotal expenses: 112.71% of revenue

2020Expense mix: 73.0% mission · 8.4% management · 18.6% fundraisingTotal expenses: 109.47% of revenue

2019Expense mix: 78.6% mission · 7.1% management · 14.2% fundraisingTotal expenses: 112.90% of revenue

2018Expense mix: 79.9% mission · 7.6% management · 12.5% fundraisingTotal expenses: 128.91% of revenue

2017Expense mix: 83.4% mission · 5.3% management · 11.3% fundraisingTotal expenses: 153.30% of revenue

Money in and money out

Revenue$20,939,101

Expenses$26,026,684

Annual shortfall $5,087,583 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$17,553,332 · 67.4% of expenses

Management and office costs$2,032,093 · 7.8% of expenses

Fundraising$6,441,259 · 24.7% of expenses

See all reported dollar amounts

Revenue$20,939,101

Expenses$26,026,684

Assets$100,352,304

Income$102,429,753

Contributions$20,291,104

Mission work (program services)$17,553,332

Fundraising$6,441,259

Grants given$133,624,687

Average grant$85,712

Management and general$2,032,093

Executive compensation (total)$1,934,133

Stocks and bonds$68,820,941

Accounting fees$93,307

Investing fees$88,704

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

PATRICK REEDYCHIEF DEVELOPMENT OFFICER · 38 hrs/week $351,930Base $270,892 · Other $81,038

KULDIP DAVESENIOR VICE PRESIDENT RESEARCH · 38 hrs/week $308,061Base $232,488 · Other $75,573

LANCE SLAUGHTERSVP STRATEGIC ALLIANCES & GOVERNANCE · 38 hrs/week $292,560Base $245,671 · Other $46,889

DEAN FEENERCHIEF INFORMATION & TECHNOLOGY OFFICER · 38 hrs/week $290,954Base $264,616 · Other $26,338

JENNIFER HJELLECHIEF COMMUNITY ENGAGEMENT OFFICER · 38 hrs/week $275,769Base $244,313 · Other $31,456

BRIAN FREDERICKCHIEF MARKETING & COMMUNICATIONS OFFICER · 38 hrs/week $265,670Base $250,253 · Other $15,417

KEITH GARYVICE PRESIDENT MISSION ACCELERATION · 38 hrs/week $264,984Base $219,020 · Other $45,964

VICKIE LOBELLOSENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE · 38 hrs/week $256,438Base $237,001 · Other $19,437

KIMBERLY HARDING-MAGINNISSENIOR VICE PRESIDENT CARE SERVICES · 38 hrs/week $254,092Base $221,492 · Other $32,600

NICOLE ECKCHIEF STRATEGY OFFICER · 38 hrs/week $249,217Base $231,124 · Other $18,093

NEIL THAKURCHIEF MISSION OFFICER · 38 hrs/week $232,028Base $195,440 · Other $36,588

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (43)

PATRICK REEDYCHIEF DEVELOPMENT OFFICER

KULDIP DAVESENIOR VICE PRESIDENT RESEARCH

LANCE SLAUGHTERSVP STRATEGIC ALLIANCES & GOVERNANCE

DEAN FEENERCHIEF INFORMATION & TECHNOLOGY OFFICER

JENNIFER HJELLECHIEF COMMUNITY ENGAGEMENT OFFICER

BRIAN FREDERICKCHIEF MARKETING & COMMUNICATIONS OFFICER

KEITH GARYVICE PRESIDENT MISSION ACCELERATION

VICKIE LOBELLOSENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE

KIMBERLY HARDING-MAGINNISSENIOR VICE PRESIDENT CARE SERVICES

NICOLE ECKCHIEF STRATEGY OFFICER

NEIL THAKURCHIEF MISSION OFFICER

PAUL INGHOLTTRUSTEE (THRU 07/24)

MARK CALMESTRUSTEE (THRU 07/24)

MARK STANCILTREASURER

MICHAEL BENATARTRUSTEE

NANCY LEAMONDVICE CHAIR

KENTON VAN HARTENTRUSTEE (THRU 10/24)

PETER MCKOWNTRUSTEE

REBECCA MOSSTRUSTEE

SANDRA PIERSOLTRUSTEE

SCOTT KAUFFMANIMMEDIATE PAST CHAIR

SEDA GOFFTRUSTEE

STEVE HANONSECRETARY

TOM CARROLLTRUSTEE

WILLIAM SOFFELLTRUSTEE

DOUGH BUTCHERTRUSTEE

BERNIE ZIPPRICHTRUSTEE

CALANEET BALASPRESIDENT AND CEO

CHRIS TONNIGESTRUSTEE

CHRISTI L KOLARCIK PHDTRUSTEE (THRU 07/24)

CONNIE HOUSTONTRUSTEE

DANIELLE BOISVERTTRUSTEE

DAVID VAN DE RIETTRUSTEE

DOUG BUTCHERTRUSTEE

LARRY FALIVENACHAIR

EUGENE BRANDON PHDTRUSTEE

EVE DRYERTRUSTEE

FRED M DEGRANDISTRUSTEE

GREG MITCHELLCHIEF FINANCIAL OFFICER

J THOMAS MAYTRUSTEE

JESSE YBARRATRUSTEE

KELLY HALLTRUSTEE

ANNETTE BOWMANTRUSTEE

About this charity

Recognized since: January 1990
Location: 1300 WILSON BLVD 600, ARLINGTON, VA 22209
County: Arlington
In care of: CALANEET BALAS
Primary officer: CALANEET BALAS, PRESIDENT AND CEO

How to reach them

WebsiteVisit the charity’s website Emailgiftplanning@als.org Phone(202) 407-8580

Filing and classification

Latest tax year: 2024
Tax period began: February 1, 2025
Return type: 990
Tax preparer: CLIFTONLARSONALLEN LLP
NTEE classification: Diseases, Disorders & Medical Disciplines (G500)
IRS tax category: Voluntary Health Organizations
Grant-giving organization: Yes