THE JEFFREY MODELL FOUNDATION INC Charity Report

Public IRS 990 nonprofit record

THE JEFFREY MODELL FOUNDATION INC

EIN 13-3380237 · Health Care (E)

What they do

The Foundation is Dedicated to The Early Diagnosis, Treatment and Ultimate Cure of Primary Immunodeficiency Diseases. The Foundations Primary Mission is Supporting Basic and Clinical Research, Physician Education, Patient Support, Public Awareness, Advocacy and Newborn Screening. The Foundation Generates Support Through Contributions From The General Public, Industry, and Government Agencies. The Foundation Sponsors Physician Symposia, Conferences, Educational Events for Physicians and Patients, and Awareness Programs to Reach The Public.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $91.60 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders35 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

$91.60of every $100 spent was reported for mission workThe IRS calls this “program services.”

$2.90of every $100 spent was reported for fundraisingMoney spent asking for more donations.

$90.78spent for every $100 of revenueRevenue covered expenses this year.

$5.50of every $100 spent was reported for management and office costsThis number alone does not tell us how much good they did.

$4.97in assets for every $1 spent this yearSome assets cannot be spent right away.

86.2%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $716,538 for FREDERICK MODELL (PRESIDENT). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100spent

Where each $100 went

These are the charity’s reported Form 990 spending categories.

Mission workProgram services$91.60

ManagementOffice and general costs$5.50

FundraisingAsking for donations$2.90

Has the pattern changed?

Each bar shows the share of annual spending reported for mission work, management, and fundraising.

202491.6% mission

202391.4% mission

202290.9% mission

202191.8% mission

202091.1% mission

201993.7% mission

201891.1% mission

201789.4% mission

Money in and money out

Revenue$10,208,043

Expenses$9,266,854

Annual surplus $941,189 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$8,492,018 · 91.6% of expenses

Management and office costs$506,864 · 5.5% of expenses

Fundraising$267,972 · 2.9% of expenses

See all reported dollar amounts

Revenue$10,208,043

Expenses$9,266,854

Assets$46,039,860

Income$15,043,758

Contributions$8,802,593

Mission work (program services)$8,492,018

Fundraising$267,972

Grants given$9,983,041

Average grant$46,005

Management and general$506,864

Accounting fees$47,500

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

FREDERICK MODELLPRESIDENT · 40 hrs/week $716,538

VANESSA TENEMBAUMEXECUTIVE DIRECTOR · 40 hrs/week $354,119

JESSICA QUINNSCIENTIFIC DIRECTOR · 40 hrs/week $200,677

CHRISTOPHER SIMSCHIEF FINANCIAL OFFICER · 40 hrs/week $198,273

ROGER DAVILLARole not listed · 40 hrs/week $197,465

ROGER DAVILLAPRINCIPAL OFFICER · 40 hrs/week $197,465

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (35)

FREDERICK MODELLPRESIDENT

VANESSA TENEMBAUMEXECUTIVE DIRECTOR

JESSICA QUINNSCIENTIFIC DIRECTOR

CHRISTOPHER SIMSCHIEF FINANCIAL OFFICER

ROGER DAVILLA

ROGER DAVILLAPRINCIPAL OFFICER

LISA STEPHEN LAWRENCEDIRECTOR

WENDY LEVINEDIRECTOR

LISA STEPHEN SHUMANDIRECTOR

LISA WILLIAM WEXLERDIRECTOR

LUCIANA MICHAEL SOLOMONDIRECTOR

LYNN MANHEIMDIRECTOR

MICHAEL DAVIDSONDIRECTOR

ROBBIE ALAN FRANKLINESQDIRECTOR

RON SNYDERDIRECTOR

RYAN G SMITHDIRECTOR

SUSAN BARRY STEIN MDDIRECTOR

TAYLOR SMITHDIRECTOR

ALLYSON ALAN GALISHOFFDIRECTOR

JONATHAN MECHANIC ESQDIRECTOR

JODI PULICEDIRECTOR

JENNIFER CHAITMAN DVMDIRECTOR

JASON SHUMANDIRECTOR

HELEN CHAITMAN ESQDIRECTOR

HASSAN AHMEDDIRECTOR

GREG SMITHDIRECTOR

GENE MANHEIMDIRECTOR

FRANN ERIC FRANCISDIRECTOR

FELICE AXELRODDIRECTOR

FAISAL KHALIDOVERSEER

DEBBI MAX LEBERSFELDDIRECTOR

DEBBE LONGO STROUTDIRECTOR

CAROL JAMES RANDELDIRECTOR

BRENDA GARY LAVIGNADIRECTOR

BETTINA EMDENDIRECTOR

About this charity

Recognized since: January 1987
Location: 780 THIRD AVENUE, NEW YORK, NY 10017
County: New York
In care of: FREDERICK MODELL
Primary officer: FREDERICK MODELL, President

How to reach them

WebsiteVisit the charity’s website Emailimmunews@jmfworld.org Phone(212) 819-0200

Filing and classification

Latest tax year: 2024
Tax period began: January 1, 2024
Return type: 990
Tax preparer: ADEPTUS ADVISORS LLC
NTEE classification: Health Care (E)
IRS tax category: Health Care
Grant-giving organization: Yes