MYASTHENIA GRAVIS FOUNDATION OF AMERICA INC Charity Report

Public IRS 990 nonprofit record

MYASTHENIA GRAVIS FOUNDATION OF AMERICA INC

EIN 13-5672224 · Medical Research (H56Z)

What they do

Committed to Finding A Cure for Myasthenia Gravis and Closely Related Disorders, Improving Treatment Options, and Providing Information and Support to People With Myasthenia Gravis Through Research, Education, Community Programs and Advocacy.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $77.80 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders28 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

72.84%of revenue went to mission work77.8% of expenses · Program services

7.89%of revenue went to fundraising8.4% of expenses

$93.62spent for every $100 of revenueRevenue covered expenses this year.

12.90%of revenue went to management and office costs13.8% of expenses

$2.16in assets for every $1 spent this yearSome assets cannot be spent right away.

84.0%of its money came from giftsOther money may come from services or investments.

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Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $336,903 for SAMANTHA MASTERSON (CHIEF EXECUTIVE OFFICER). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$7,559,812

Mission workProgram services$5,506,36872.84% of revenue77.8% of expenses

ManagementOffice and general costs$975,17012.90% of revenue13.8% of expenses

FundraisingAsking for donations$596,2477.89% of revenue8.4% of expenses

Revenue left after expensesReported annual surplus$482,0276.38% of revenueShown in gray on the chart

Total expenses$7,077,78593.62% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 77.8% mission · 13.8% management · 8.4% fundraisingTotal expenses: 93.62% of revenue

2024Expense mix: 73.5% mission · 14.0% management · 12.5% fundraisingTotal expenses: 89.55% of revenue

2023Expense mix: 67.4% mission · 16.6% management · 16.1% fundraisingTotal expenses: 100.70% of revenue

2022Expense mix: 74.6% mission · 12.6% management · 12.7% fundraisingTotal expenses: 86.38% of revenue

2021Expense mix: 69.0% mission · 16.8% management · 14.1% fundraisingTotal expenses: 78.32% of revenue

2020Expense mix: 67.9% mission · 16.0% management · 16.0% fundraisingTotal expenses: 69.26% of revenue

2019Expense mix: 72.3% mission · 18.0% management · 9.6% fundraisingTotal expenses: 87.84% of revenue

2018Expense mix: 71.8% mission · 15.5% management · 19.4% fundraisingTotal expenses: 75.65% of revenue

Money in and money out

Revenue$7,559,812

Expenses$7,077,785

Annual surplus $482,027 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$5,506,368 · 77.8% of expenses

Management and office costs$975,170 · 13.8% of expenses

Fundraising$596,247 · 8.4% of expenses

See all reported dollar amounts

Revenue$7,559,812

Expenses$7,077,785

Assets$15,271,954

Income$7,684,233

Contributions$6,346,619

Mission work (program services)$5,506,368

Fundraising$596,247

Grants given$3,715,811

Average grant$86,414

Management and general$975,170

Executive compensation (total)$277,461

Stocks and bonds$12,568,901

Accounting fees$16,700

Investing fees$98,936

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

SAMANTHA MASTERSONCHIEF EXECUTIVE OFFICER · 40 hrs/week $336,903Base $330,105 · Other $6,798

CRAIG STENGERCHIEF OPERATING OFFICER · 40 hrs/week $203,969Base $193,297 · Other $10,672

MICHAEL ANTONELLISVICE PRESIDENT, GLOBAL MARKETING AND COMMUNICATION · 40 hrs/week $178,314Base $172,849 · Other $5,465

DARYL LEENATIONAL DIRECTOR, FINANCE · 40 hrs/week $138,698Base $123,544 · Other $15,154

DANIELLE KERKOVICHVICE PRESIDENT, GLOBAL RESEARCH · 40 hrs/week $128,792Base $128,742 · Other $50

GENEVIEVE MVALONATIONAL DIRECTOR, PROGRAMS · 40 hrs/week $115,107Base $105,037 · Other $10,070

KATHARINE STOBERNATIONAL DIRECTOR, ACADEMI · 40 hrs/week $104,250Base $100,825 · Other $3,425

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (28)

SAMANTHA MASTERSONCHIEF EXECUTIVE OFFICER

CRAIG STENGERCHIEF OPERATING OFFICER

MICHAEL ANTONELLISVICE PRESIDENT, GLOBAL MARKETING AND COMMUNICATION

DARYL LEENATIONAL DIRECTOR, FINANCE

DANIELLE KERKOVICHVICE PRESIDENT, GLOBAL RESEARCH

GENEVIEVE MVALONATIONAL DIRECTOR, PROGRAMS

KATHARINE STOBERNATIONAL DIRECTOR, ACADEMI

MARK KALISHDIRECTOR (NON-VOTING)

KELLY GWATHMEY MDDIRECTOR

MARK WILLIGDIRECTOR (BEG 12/25)

PAUL STRUMPH MDDIRECTOR

RICHARD J NOWAK MDDIRECTOR

ROBERT THOMASCHAIR

SAM SCHULOFFDIRECTOR (NON-VOTING)

SUSAN KLINGERDIRECTOR (NON-VOTING)

TODD FOWLERDIRECTOR (BEG 12/25)

WES CAUDLEDIRECTOR (BEG 12/25)

MARCIA LORIMERDIRECTOR (NON-VOTING)

KYLE SELLDIRECTOR

KEVIN OCONNOR MDDIRECTOR

JUSTIN STACHTIARISTREASURER AND VICE CHAIR

ESTHER LANDDIRECTOR (NON-VOTING)

ERIN HARRIGANDIRECTOR (BEG 10/25)

CLYDE HOSEINDIRECTOR

CALLUM SCHJERNINGDIRECTOR

BRIAN GLADDENDIRECTOR (NON-VOTING)

ANI MAITRADIRECTOR

ADREJIA BOUTTESECRETARY

About this charity

Recognized since: January 1954
Location: 290 TURNPIKE RD STE 5 # 315, WESTBOROUGH, MA 01581-2843
County: Worcester
In care of: Justin Stachtiaris
Primary officer: Justin Stachtiaris, Treasurer

How to reach them

WebsiteVisit the charity’s website Phone(949) 307-3330

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: DESMOND & AHERN LTD
NTEE classification: Medical Research (H56Z)
IRS tax category: Voluntary Health Organizations
Grant-giving organization: Yes