CARDIO-FACIO-CUTANEOUS INTERNATIONAL
EIN 16-1569293 · Education N.E.C. (B99)
What they do
CFC Internationals Mission is to Improve The Quality of Life for Individuals With Cardiofaciocutaneous Syndrome and Their Families Through Support, Research, Awareness, and Education. Our Vision is to Advance Understanding and Treatment of CFC Syndrome. We Achieve Our Mission and Seek Our Vision By Providing Comprehensive Educational Materials, A Robust Website, Condition Management Webinars, and Disseminate Vital Information - Like Peer-reviewed Treatment Guidelines - to Diagnosed Patients and Caregivers. We Improve Access to Experts In The Management of CFC Syndrome By Hosting A Biennial Medical Conference As Well As At Least One Rasopathy Clinic Care Event Per Year. Our Patient Families Convene for Support In Multiple Ways: Through A Facebook Support Group, Six to Eight Virtual Support Groups Per Month, and Regional Family Meetups. Through Our Medical Advisory Board, We Strive to Ensure That Healthcare Professionals Have Immediate Access to The Most Current Information, Facilitatin
How to reach them
ContactAlexis NashPresident
In care of% GLENDA E HUX
Mailing address3665 E BAY DR STE 204, LARGO, FL 33771-1989
Main phone(631) 756-9500 WebsiteVisit the charity’s website Emailinfo@cfcsyndrome.orgSource: Form 990 public record. Confirm details with the nonprofit before visiting or sending anything.
Represent this organization?Claim this nonprofit to change contact informationAbout this charity
- Recognized since
- October 1999
- County
- Suffolk
Should I give to this charity?
Of every $100 spent, about $52.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
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Basic facts we verified
Money report from 2024The charity has a recent tax report to read.
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They name their leaders9 people are listed in the latest report.
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Financial picture
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Mission work is the Form 990 category called program services. These are the organization’s reported accounting categories, not an independent measure of results.