CHIARI & SYRINGOMYELIA RESEARCH FOUNDATION INC
EIN 20-1959386 · Neurology & Neuroscience Research (H96)
What they do
STRIVE for IMPROVED SURGICAL OUTCOMES for CHIARI MALFORMATION and SYRINGOMYELIA PATIENTS INCLUDING MUCH LOWER INITIAL COMPLICATION RATES. ONGOING STUDIES: PRE- and POST-OPERATIVE MORPHOLOGICAL CHARACTERISTICS ASSOCIATED WITH SYRINX OUTCOME AFTER POSTERIOR FOSSA DECOMPRESSION for CHIARI MALFORMATION- AUSTRALIA - APROXIMATELY 50% of GRANT PAID IN 2025. WE WOULD EXPECT to PAY THE REMAINDER IN 2026 - APROXIMATELY 47,000 - DATA FROM TWO CENTERS COLLECTED - MANUAL MORPHOMETRIC DATA COLLECTION is PROCEEDING - "TRAINING THE AI BOT" for A SEPARATE ANALYSIS is ONGOING - STATICAL ANALYSIS and DETERMINATION of "NEXT STEPS" LATER IN 2026 PUBLISH COMPLICATION RATES and SURGICAL TECHNIQUES FROM LOW COMPLICATION RATE CENTERS to SET A BENCHMARK for ALL CENTERS. -ONE CENTER NEAR SUBMISSION for PUBLICATION and ONE IN THE DISCUSSION STAGE. UPDATING CLINICAL DATA for PUBLICATION ON SYRINX SHUNT PLACEMENT OUTCOMES.
Should I give to this charity?
Of every $100 spent, about $98.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders5 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
Money made simple
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- Who did you help? Ask for a recent story or report that shows real results.
- What will my money do? Ask exactly what your gift will pay for.
- Is this really the charity? Give only through its official website or confirmed phone number.
Worth asking: Expenses exceeded revenue by $31,535 this year. Ask whether that was planned or caused by a one-time event.
Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.
Has the pattern changed?
Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (5)
BARBARA KANESECRETARY
JEFF MILLERTREASURER
KEVIN STRINGERVICE PRESIDE
LAURA HOLENADIRECTOR
MARK S KANEPRESIDENT
About this charity
- Recognized since
- January 2005
- Location
- 228 GARRY DR, WEST SENECA, NY 14224-4504
- County
- Erie
- In care of
- % KANE & SABO CPAS
- Primary officer
- MARK S KANE, PRESIDENT
How to reach them
Filing and classification
- Latest tax year
- 2025
- Tax period began
- January 1, 2025
- Return type
- 990EZ
- Tax preparer
- EDWARD L ARCARA CPA PC
- NTEE classification
- Neurology & Neuroscience Research (H96)
- IRS tax category
- Neurology & Neuroscience Research