CONGENITAL HYPERINSULINISM INTERNATIONAL Charity Report

Public IRS 990 nonprofit record

CONGENITAL HYPERINSULINISM INTERNATIONAL

EIN 20-3068945 · Fund Raising & Fund Distribution - Voluntary Health Associations (G12)

What they do

Congenital Hyperinsulinism International (CHI) is A Nonprofit 501(c)(3) Corporation Dedicated to Improving The Lives of Babies, Children, and Adults Affected By Congenital Hyperinsulinism (HI). HI is A Life-threatening Genetic Disorder That Causes Severe Low Blood Sugar (hypoglycemia) In Infants and Children, Though In 50% of Patients, The Genetic Cause is Unknown. for Those With HI, The Beta Cells of The Pancreas Secrete Too Much Insulin In An Unregulated Manner. Excess Insulin Causes Hypoglycemia. Prolonged or Severe Hypoglycemia Can Cause Seizures, Permanent Brain Damage, or Even Death If Left Untreated. A Good Prognosis is Far More Likely With A Timely Diagnosis and Proper Management.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $88.10 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders10 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

77.78%of revenue went to mission work88.1% of expenses · Program services

5.86%of revenue went to fundraising6.6% of expenses

$88.33spent for every $100 of revenueRevenue covered expenses this year.

4.69%of revenue went to management and office costs5.3% of expenses

$1.93in assets for every $1 spent this yearSome assets cannot be spent right away.

20.4%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $114,071 for JULIE RASKIN (CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$1,275,774

Mission workProgram services$992,26777.78% of revenue88.1% of expenses

ManagementOffice and general costs$59,8424.69% of revenue5.3% of expenses

FundraisingAsking for donations$74,7465.86% of revenue6.6% of expenses

Revenue left after expensesReported annual surplus$148,91911.67% of revenueShown in gray on the chart

Total expenses$1,126,85588.33% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 88.1% mission · 5.3% management · 6.6% fundraisingTotal expenses: 88.33% of revenue

2023Expense mix: 88.2% mission · 4.0% management · 7.8% fundraisingTotal expenses: 90.71% of revenue

2022Expense mix: 84.4% mission · 4.2% management · 11.4% fundraisingTotal expenses: 66.06% of revenue

2021Expense mix: 85.3% mission · 7.8% management · 6.9% fundraisingTotal expenses: 60.99% of revenue

2020Expense mix: 84.9% mission · 6.5% management · 8.6% fundraisingTotal expenses: 66.08% of revenue

2019Expense mix: 88.7% mission · 5.0% management · 6.2% fundraisingTotal expenses: 105.96% of revenue

2018Expense mix: 87.3% mission · 6.2% management · 6.5% fundraisingTotal expenses: 107.44% of revenue

2017Expense mix: 87.0% mission · 6.3% management · 6.7% fundraisingTotal expenses: 59.47% of revenue

Money in and money out

Revenue$1,275,774

Expenses$1,126,855

Annual surplus $148,919 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$992,267 · 88.1% of expenses

Management and office costs$59,842 · 5.3% of expenses

Fundraising$74,746 · 6.6% of expenses

See all reported dollar amounts

Revenue$1,275,774

Expenses$1,126,855

Assets$2,173,955

Income$1,330,299

Contributions$260,171

Mission work (program services)$992,267

Fundraising$74,746

Grants given$348,365

Average grant$38,707

Management and general$59,842

Executive compensation (total)$83,010

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

JULIE RASKINCEO · 40 hrs/week $114,071

TAI PASQUINICRO · 40 hrs/week $95,000

JENNIFER SCHMITTCOO · 40 hrs/week $90,000

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (10)

JULIE RASKINCEO

TAI PASQUINICRO

JENNIFER SCHMITTCOO

JULIE SHELDONVICE PRESIDENT

JUSTYNA MONTEMURRODIRECTOR

LAURA SULLIVANPRESIDENT

MASON SMITHTREASURER

PAM WILLIAMSDIRECTOR

SHEILA BOSESECRETARY

TRUDY WARDDIRECTOR

About this charity

Recognized since: January 2006
Location: PO BOX 135, GLEN RIDGE, NJ 07028
County: Essex
In care of: JULIE SHELDON
Primary officer: JULIE SHELDON, Treasurer

How to reach them

WebsiteVisit the charity’s website Emailinfo@congenitalhi.org Phone(973) 566-0334

Filing and classification

Latest tax year: 2024
Tax period began: January 1, 2024
Return type: 990
Tax preparer: MAUREEN A LEIDL CPA
NTEE classification: Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
IRS tax category: Fund Raising & Fund Distribution
Grant-giving organization: Yes