ALPORT SYNDROME FOUNDATION INC Charity Report

Public IRS 990 nonprofit record

ALPORT SYNDROME FOUNDATION INC

EIN 20-8237159 · Patient & Family Support (E86)

What they do

THE FOUNDATION WAS CREATED to EDUCATE and SUPPORT PATIENTS and FAMILIES THAT HAVE BEEN AFFECTED BY THIS GENETIC KIDNEY DISEASE WITH A GOAL of FUNDING RESEARCH, to FIND MORE EFFECTIVE TREATMENT PROTOCOLS and to ULTIMATELY FIND A CURE.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $91.30 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders10 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

76.75%of revenue went to mission work91.3% of expenses · Program services

2.11%of revenue went to fundraising2.5% of expenses

$84.03spent for every $100 of revenueRevenue covered expenses this year.

5.17%of revenue went to management and office costs6.2% of expenses

$2.81in assets for every $1 spent this yearSome assets cannot be spent right away.

89.0%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $105,000 for LISA BONEBRAKE (EXECUTIVE DIRECTOR). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$1,194,735

Mission workProgram services$916,99376.75% of revenue91.3% of expenses

ManagementOffice and general costs$61,7765.17% of revenue6.2% of expenses

FundraisingAsking for donations$25,1792.11% of revenue2.5% of expenses

Revenue left after expensesReported annual surplus$190,78715.97% of revenueShown in gray on the chart

Total expenses$1,003,94884.03% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 91.3% mission · 6.2% management · 2.5% fundraisingTotal expenses: 84.03% of revenue

2023Expense mix: 86.0% mission · 9.7% management · 4.3% fundraisingTotal expenses: 60.26% of revenue

2022Expense mix: 84.6% mission · 10.5% management · 4.8% fundraisingTotal expenses: 50.42% of revenue

2021Expense mix: 84.3% mission · 9.7% management · 6.0% fundraisingTotal expenses: 48.11% of revenue

2020Expense mix: 85.9% mission · 8.8% management · 5.3% fundraisingTotal expenses: 59.34% of revenue

2019Expense mix: 86.4% mission · 10.1% management · 3.5% fundraisingTotal expenses: 118.84% of revenue

2018Expense mix: 87.7% mission · 8.8% management · 3.6% fundraisingTotal expenses: 85.97% of revenue

2017Expense mix: 87.1% mission · 8.9% management · 4.0% fundraisingTotal expenses: 64.38% of revenue

Money in and money out

Revenue$1,194,735

Expenses$1,003,948

Annual surplus $190,787 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$916,993 · 91.3% of expenses

Management and office costs$61,776 · 6.2% of expenses

Fundraising$25,179 · 2.5% of expenses

See all reported dollar amounts

Revenue$1,194,735

Expenses$1,003,948

Assets$2,817,931

Income$1,402,656

Contributions$1,063,256

Mission work (program services)$916,993

Fundraising$25,179

Grants given$1,356,974

Average grant$90,465

Management and general$61,776

Stocks and bonds$2,141,999

Accounting fees$22,371

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

LISA BONEBRAKEEXECUTIVE DIRECTOR · 65 hrs/week $105,000

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (10)

LISA BONEBRAKEEXECUTIVE DIRECTOR

AMY RHODESDIRECTOR

ANDREW KRONENBERGBOARD CHAIR

DANIEL KILPATRICKTREASURER

DECEMBER WESTDIRECTOR

MARTY DUNLEAVYDIRECTOR

PHILLIP KUMNICKDIRECTOR

RYAN LINDERSECRETARY

SHARON LAGASCO-FOUNDER, DIRECTOR PAST CHAIR

STEPHEN MALACHDIRECTOR

About this charity

Recognized since: January 2007
Location: 1608 E BRIARWOOD TER, PHOENIX, AZ 85048-9414
County: Maricopa
In care of: % SHARON LAGAS
Primary officer: DANIEL KILPATRICK, TREASURER

How to reach them

WebsiteVisit the charity’s website Emailinfo@alportsyndrome.org Phone(480) 800-3510

Filing and classification

Latest tax year: 2024
Tax period began: January 1, 2024
Return type: 990
Tax preparer: SECHLER MORGAN CPAS PLLC
NTEE classification: Patient & Family Support (E86)
IRS tax category: Patient & Family Support
Grant-giving organization: Yes