GBSCIDP FOUNDATION INTERNATIONAL INC Charity Report

Public IRS 990 nonprofit record

GBSCIDP FOUNDATION INTERNATIONAL INC

EIN 22-2474769 · Diseases, Disorders & Medical Disciplines (G99Z)

What they do

to IMPROVE THE QUALITY of LIFE for INDIVIDUALS and FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP and VARIANTS BY 1) PROVIDING A NETWORK for ALL PATIENTS, THEIR CAREGIVERS and FAMILIES 2) PROVIDING PUBLIC and PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED to HEIGHTEN AWARENESS and IMPROVE THE UNDERSTANDING and TREATMENT of GBS, CIDP and VARIANTS. 3) EXPANDING THE FOUNDATIONS ROLE IN SPONSORING RESEARCH and ENGAGING IN PATIENT ADVOCACY.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $88.40 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders18 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

83.97%of revenue went to mission work88.4% of expenses · Program services

5.69%of revenue went to fundraising6.0% of expenses

$95.04spent for every $100 of revenueRevenue covered expenses this year.

5.37%of revenue went to management and office costs5.7% of expenses

$2.70in assets for every $1 spent this yearSome assets cannot be spent right away.

91.7%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $418,236 for ELIZABETH BUTLER (PRESIDENT &CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$7,799,708

Mission workProgram services$6,549,68983.97% of revenue88.4% of expenses

ManagementOffice and general costs$419,1955.37% of revenue5.7% of expenses

FundraisingAsking for donations$444,0365.69% of revenue6.0% of expenses

Revenue left after expensesReported annual surplus$386,7884.96% of revenueShown in gray on the chart

Total expenses$7,412,92095.04% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 88.4% mission · 5.7% management · 6.0% fundraisingTotal expenses: 95.04% of revenue

2024Expense mix: 84.8% mission · 8.3% management · 6.9% fundraisingTotal expenses: 92.77% of revenue

2023Expense mix: 88.1% mission · 6.9% management · 4.9% fundraisingTotal expenses: 72.22% of revenue

2022Expense mix: 88.2% mission · 7.5% management · 4.3% fundraisingTotal expenses: 85.14% of revenue

2021Expense mix: 84.7% mission · 9.4% management · 5.9% fundraisingTotal expenses: 62.69% of revenue

2020Expense mix: 86.4% mission · 8.9% management · 4.7% fundraisingTotal expenses: 84.31% of revenue

2019Expense mix: 87.6% mission · 8.2% management · 4.2% fundraisingTotal expenses: 105.16% of revenue

2018Expense mix: 86.3% mission · 10.1% management · 3.6% fundraisingTotal expenses: 78.98% of revenue

Money in and money out

Revenue$7,799,708

Expenses$7,412,920

Annual surplus $386,788 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$6,549,689 · 88.4% of expenses

Management and office costs$419,195 · 5.7% of expenses

Fundraising$444,036 · 6.0% of expenses

See all reported dollar amounts

Revenue$7,799,708

Expenses$7,412,920

Assets$20,008,529

Income$9,768,331

Contributions$7,154,451

Mission work (program services)$6,549,689

Fundraising$444,036

Grants given$698,341

Average grant$77,593

Management and general$419,195

Executive compensation (total)$299,511

Stocks and bonds$16,096,010

Accounting fees$24,700

Investing fees$88,441

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

ELIZABETH BUTLERPRESIDENT &CEO · 40 hrs/week $418,236Base $372,435 · Other $45,801

MAUREEN NEVILLECHIEF OF PROGRAMS & MKTG · 40 hrs/week $242,399Base $208,000 · Other $34,399

LAURA BLAIRCFO · 40 hrs/week $228,943Base $204,700 · Other $24,243

RICHARD SPERRYCHIEF STRATEGY OFFICER · 40 hrs/week $225,303Base $213,558 · Other $11,745

KELLY MCCOYDIR OF PATIENT RELATIONS & EVENTS · 40 hrs/week $121,390Base $103,650 · Other $17,740

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (18)

ELIZABETH BUTLERPRESIDENT &CEO

MAUREEN NEVILLECHIEF OF PROGRAMS & MKTG

LAURA BLAIRCFO

RICHARD SPERRYCHIEF STRATEGY OFFICER

KELLY MCCOYDIR OF PATIENT RELATIONS & EVENTS

VALENTINA TREVINODIRECTOR

BETSY BLAKEDIRECTOR

SHANE SUMLINDIRECTOR

RUSSELL WALTERSECRETARY

PETER DONOFRIO MDVICE PRESIDENT

MICHELE DEARINGDIRECTOR

JIM YADLONTREASURER

JEFF ALLEN MDDIRECTOR

DIANA CASTRODIRECTOR

DAVE ROSSNERDIRECTOR

CORBIN WHITTINGTONPRESIDENT

CHRISSIE JENKINSDIRECTOR

BRENDA PERALESDIRECTOR

About this charity

Recognized since: January 1986
Location: 375 E ELM ST STE 101, CONSHOHOCKEN, PA 19428-1973
County: Montgomery
In care of: ELIZABETH BUTLER
Primary officer: ELIZABETH BUTLER, PRESIDENT & CEO

How to reach them

WebsiteVisit the charity’s website Phone(610) 667-0131

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: APRIO ADVISORY GROUP LLC
NTEE classification: Diseases, Disorders & Medical Disciplines (G99Z)
IRS tax category: Human Rights Organizations
Grant-giving organization: Yes