CHARCOT-MARIE-TOOTH ASSOCIATION Charity Report

Public IRS 990 nonprofit record

CHARCOT-MARIE-TOOTH ASSOCIATION

EIN 22-2480896 · Diseases, Disorders & Medical Disciplines (G8XZ)

What they do

CMTA AWARDS RESEARCH FELLOWSHIPS and GRANTS for RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS of ALL RESEARCHERS RECEIVING ITS FUNDING to PROMOTE KNOWLEDGE EXCHANGE and SYNERGY. IT USES THE SERVICES of A MEDICAL RESEARCH CONSULTANT to OVERSEE THE SELECTION of THE RECEIPIENTS of THE RESEARCH FUNDING and TP WRITE THE GRANTS and CONTRACTS WITH THESE RESEARCHERS.

Before you give

Are they doing good?

Easy charity check

Good signs so far

The public paperwork has several good signs. Now check whether the charity can show who it helped.

Here is the honest answer: A tax form shows money and paperwork. It cannot prove that people, animals, or the community were truly helped.

Good signs we looked for

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders21 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

$107.16spent for every $100 of revenueSpending was higher than revenue this year.

$4.60of every $100 spent went to management and office costsThis number alone does not tell us how much good they did.

$1.10in assets for every $1 spent this yearSome assets cannot be spent right away.

83.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $491,794 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $310,996 for SUZANNE BRUHN (CHIEF EXECUTIVE OFFICER). Compare pay with organizations of similar size and complexity.

Bottom line: Good paperwork is a good sign—not proof. The best answer comes when the charity can show what it changed, who it helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

Money in and money out

Revenue$6,864,031

Expenses$7,355,825

Annual shortfall $491,794 Expenses were higher than revenue for this filing year.

Selected spending reported on the 990

Each amount is compared with total expenses separately. These categories can overlap, so they should not be added together as a pie chart.

Management and general$340,433 · 4.6% of expenses

Grants paid$20,622,126 · 280.4% of expenses

This source amount exceeds total expenses; compare the filing details carefully.

Reported executive compensation (total)$361,662 · 4.9% of expenses

See all reported dollar amounts

Revenue$6,864,031

Expenses$7,355,825

Assets$8,112,362

Income$7,058,095

Contributions$5,717,540

Grants given$20,622,126

Average grant$159,861

Management and general$340,433

Executive compensation (total)$361,662

Stocks and bonds$6,921,397

Accounting fees$126,050

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

SUZANNE BRUHNCHIEF EXECUTIVE OFFICER · 40 hrs/week $310,996Base $300,000 · Other $10,996

JEANA SWEENEYCHIEF ENGAGEMENT AND GIFT OFFICER · 40 hrs/week $150,179Base $144,515 · Other $5,664

KATHERINE FORSEYCHIEF RESEARCH OFFICER · 40 hrs/week $142,012Base $135,441 · Other $6,571

LAUREL RICHARDSONDIRECTOR OF COMMUNITY OUTREACH · 40 hrs/week $111,901Base $108,061 · Other $3,840

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (21)

SUZANNE BRUHNCHIEF EXECUTIVE OFFICER

JEANA SWEENEYCHIEF ENGAGEMENT AND GIFT OFFICER

KATHERINE FORSEYCHIEF RESEARCH OFFICER

LAUREL RICHARDSONDIRECTOR OF COMMUNITY OUTREACH

GILLES BOUCHARDBOARD CHAIR

WENDY ARNONEBOARD MEMBER

KEVIN SAMITREASURER

KEVIN MARKSBOARD MEMBER

JON PASTORBOARD MEMBER

JOHN SVARENBOARD MEMBER

HERBERT BERONSECRETARY

BERNARD COULIEBOARD MEMBER

GARY J GASPERBOARD MEMBER

DR STEVEN SCHERERBOARD MEMBER

DR MICHAEL SHYBOARD MEMBER

DAVID STARKBOARD MEMBER

DAVID COLDIRONBOARD MEMBER

DAVID APPLEBOARD MEMBER

DAN CHAMBYBOARD MEMBER

CRAIG ZELTSARBOARD MEMBER

CATHERINE ILLINGWORTHBOARD MEMBER

About this charity

Recognized since: January 1986
Location: PO BOX 105, GLENOLDEN, PA 19036
County: Delaware
In care of: SUZANNE BRUHN
Primary officer: SUZANNE BRUHN, CHIEF EXECUTIVE OFFICER

How to reach them

WebsiteVisit the charity’s website Emailinfo@cmtausa.org Phone(800) 606-2682 Officer phone(610) 427-2971

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: BARBACANE THORNTON AND COMPANY
NTEE classification: Diseases, Disorders & Medical Disciplines (G8XZ)
IRS tax category: Voluntary Health Organizations
Grant-giving organization: Yes