EPILEPSY FOUNDATION NEW ENGLAND Charity Report

Public IRS 990 nonprofit record

EPILEPSY FOUNDATION NEW ENGLAND

EIN 22-2505819 · Epilepsy (G54)

What they do

to IMPROVE THE LIVES of PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, and CONNECTION. EFNES SERVICES ARE DESIGNED to PROVIDE HELP for TODAY and HOPE for TOMORROW.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $67.60 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders24 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

61.38%of revenue went to mission work67.6% of expenses · Program services

19.97%of revenue went to fundraising22.0% of expenses

$90.84spent for every $100 of revenueRevenue covered expenses this year.

9.48%of revenue went to management and office costs10.4% of expenses

$2.26in assets for every $1 spent this yearSome assets cannot be spent right away.

28.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $298,029 for SUSAN LINN (FORMER PRESIDENT & CEO - EFNE THRU MAY25). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$7,486,018

Mission workProgram services$4,594,90361.38% of revenue67.6% of expenses

ManagementOffice and general costs$709,9309.48% of revenue10.4% of expenses

FundraisingAsking for donations$1,495,17819.97% of revenue22.0% of expenses

Revenue left after expensesReported annual surplus$686,0079.16% of revenueShown in gray on the chart

Total expenses$6,800,01190.84% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 67.6% mission · 10.4% management · 22.0% fundraisingTotal expenses: 90.84% of revenue

2023Expense mix: 72.3% mission · 12.0% management · 15.7% fundraisingTotal expenses: 87.76% of revenue

2022Expense mix: 73.8% mission · 10.1% management · 16.1% fundraisingTotal expenses: 89.84% of revenue

2021Expense mix: 63.5% mission · 15.0% management · 21.5% fundraisingTotal expenses: 78.17% of revenue

2020Expense mix: 65.6% mission · 11.4% management · 23.0% fundraisingTotal expenses: 64.21% of revenue

2019Expense mix: 69.5% mission · 10.6% management · 19.9% fundraisingTotal expenses: 90.39% of revenue

2018Expense mix: 70.6% mission · 12.2% management · 17.2% fundraisingTotal expenses: 95.60% of revenue

2017Expense mix: 69.4% mission · 7.6% management · 23.0% fundraisingTotal expenses: 91.48% of revenue

Money in and money out

Revenue$7,486,018

Expenses$6,800,011

Annual surplus $686,007 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$4,594,903 · 67.6% of expenses

Management and office costs$709,930 · 10.4% of expenses

Fundraising$1,495,178 · 22.0% of expenses

See all reported dollar amounts

Revenue$7,486,018

Expenses$6,800,011

Assets$15,377,474

Income$7,868,112

Contributions$2,116,162

Mission work (program services)$4,594,903

Fundraising$1,495,178

Grants given$972,883

Average grant$57,228

Management and general$709,930

Executive compensation (total)$441,139

Stocks and bonds$12,061,851

Accounting fees$165,608

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

SUSAN LINNFORMER PRESIDENT & CEO - EFNE THRU MAY25 · 50 hrs/week $298,029Base $278,893 · Other $19,136

JEFFREY GANZCHIEF OPERATING OFFICER - · 40 hrs/week $158,810Base $152,681 · Other $6,129

CHANDA LINNVP OF PROGRAMS & SERVICES - EFNE · 40 hrs/week $109,429Base $100,217 · Other $9,212

DAVID SEARLESVP FOR DEVELOPMENT & COMMUNICATIONS - EFNE · 40 hrs/week $107,528Base $103,824 · Other $3,704

JACQUELYN BREAULTDIRECTOR OF OPERATIONS - D · 1 hrs/week $16,084Base · Other $16,084

BRADLEY RICHPRESIDENT - DC · 1 hrs/week $10,385Base · Other $10,385

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (24)

SUSAN LINNFORMER PRESIDENT & CEO - EFNE THRU MAY25

JEFFREY GANZCHIEF OPERATING OFFICER -

CHANDA LINNVP OF PROGRAMS & SERVICES - EFNE

DAVID SEARLESVP FOR DEVELOPMENT & COMMUNICATIONS - EFNE

JACQUELYN BREAULTDIRECTOR OF OPERATIONS - D

BRADLEY RICHPRESIDENT - DC

JASON BOURQUECLERK

TIM YOUNGTREASURER

TAMARA SACHARCZYKDIRECTOR

STEVE SIRAVODIRECTOR

PHILIP HAYDON PHDDIRECTOR

MARC FIRENZEFORMER VICE CHAIR

KIMBERLEE SCHUMACHERINTERIM-PRESIDENT & CEO BEGINNING JUN25

JOHN GAITANIS MDFORMER DIRECTOR

JOE SIRAVODIRECTOR

JENNIFER CARDILLODIRECTOR

AIMEE STEVENSFORMER DIRECTOR

IKA NOVIAWATYDIRECTOR

DON HOLMESDIRECTOR

DARLENE WILSONDIRECTOR

DARA FREEDMAN-WEISSFORMER DIRECTOR

BRETT DOWNINGDIRECTOR

ANDREW COLE MDDIRECTOR

ALISON ZETTERQUISTCHAIR

About this charity

Recognized since: January 1984
Location: 175 CABOT STREET 301, LOWELL, MA 01854
County: Middlesex
In care of: KIMBERLEE SCHUMACHER
Primary officer: KIMBERLEE SCHUMACHER, INTERIM PRESIDENT & CEO

How to reach them

WebsiteVisit the charity’s website Emailinfo@epilepsynewengland.org Phone(617) 506-6041

Filing and classification

Latest tax year: 2024
Tax period began: July 1, 2024
Return type: 990
Tax preparer: NON PROFIT CAPITAL MANAGEMENT LLC
NTEE classification: Epilepsy (G54)
IRS tax category: Epilepsy
Grant-giving organization: Yes