NEUROFIBROMATOSIS MIDWEST Charity Report

Public IRS 990 nonprofit record

NEUROFIBROMATOSIS MIDWEST

EIN 22-2580173 · Medical Research (H96Z)

What they do

to IMPROVE THE LIVES of CHILDREN, ADULTS, and FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON and IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION and SUPPORT IN THE STATES of ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, and THE EASTERN HALF of MISSOURI.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $78.20 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2023The report may be old. Ask for a newer one.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders5 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

64.24%of revenue went to mission work78.2% of expenses · Program services

8.53%of revenue went to fundraising10.4% of expenses

$77.21spent for every $100 of revenueRevenue covered expenses this year.

9.35%of revenue went to management and office costs11.4% of expenses

$1.59in assets for every $1 spent this yearSome assets cannot be spent right away.

90.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2023

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$307,665

Mission workProgram services$197,64664.24% of revenue78.2% of expenses

ManagementOffice and general costs$28,7689.35% of revenue11.4% of expenses

FundraisingAsking for donations$26,2598.53% of revenue10.4% of expenses

Revenue left after expensesReported annual surplus$54,99217.87% of revenueShown in gray on the chart

Total expenses$252,67382.13% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2023CurrentExpense mix: 78.2% mission · 11.4% management · 10.4% fundraisingTotal expenses: 82.13% of revenue

2022Expense mix: 78.1% mission · 11.2% management · 10.6% fundraisingTotal expenses: 108.86% of revenue

2021Expense mix: 77.3% mission · 11.6% management · 11.1% fundraisingTotal expenses: 98.85% of revenue

2020Expense mix: 74.9% mission · 13.2% management · 11.9% fundraisingTotal expenses: 83.79% of revenue

2019Expense mix: 74.8% mission · 12.2% management · 13.0% fundraisingTotal expenses: 119.72% of revenue

2018Expense mix: 65.6% mission · 15.5% management · 18.8% fundraisingTotal expenses: 81.58% of revenue

2017Expense mix: 78.6% mission · 10.8% management · 10.6% fundraisingTotal expenses: 116.37% of revenue

Money in and money out

Revenue$327,237

Expenses$252,673

Annual surplus $74,564 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$197,646 · 78.2% of expenses

Management and office costs$28,768 · 11.4% of expenses

Fundraising$26,259 · 10.4% of expenses

See all reported dollar amounts

Revenue$327,237

Expenses$252,673

Assets$401,133

Income$343,199

Contributions$295,569

Mission work (program services)$197,646

Fundraising$26,259

Grants given$201,879

Average grant$14,420

Management and general$28,768

Stocks and bonds$294,756

Accounting fees$2,750

People

Leadership and board

Tax year 2023

Names, titles, time, and compensation below are reported by the organization on its Form 990.

No compensation was reported for these leaders. The complete board and leadership roster is shown below.

Board and leadership roster (5)

ANDY RINGOTREASURER

DENISE DULCEAKBOARD CHAIR

DIANA HABERKAMPEXECUTIVE DI

GAIL MAVROGENESBOARD MEMBER

LESLI WEGNERSECRETARY

About this charity

Recognized since: January 1993
Location: 473 DUNHAM RD STE 3, ST CHARLES, IL 60174-1427
County: Kane
In care of: DIANA HABERKAMP
Primary officer: DIANA HABERKAMP, EXECUTIVE DIRECTOR

How to reach them

WebsiteVisit the charity’s website Phone(630) 945-3562 Officer phone(630) 932-8111

Filing and classification

Latest tax year: 2023
Tax period began: October 1, 2023
Return type: 990
Tax preparer: KOLNICKI PETERSON & WIRTH CPAS
NTEE classification: Medical Research (H96Z)
Grant-giving organization: Yes