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CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION

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Public IRS 990 nonprofit record

CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION

EIN 22-3755684 · Diseases, Disorders & Medical Disciplines (G114)

What they do

CARES FOUNDATION is A NONPROFIT ORGANIZATION COMMITTED to IMPROVING THE LIVES of FAMILIES and INDIVIDUALS AFFECTED BY CONGENITAL ADRENAL HYPERPLASIA (CAH) THROUGH PROACTIVELY ADVANCING RESEARCH for A BETTER UNDERSTANDING of CAH, BETTER TREATMENTS and A CURE; EDUCATING THE PUBLIC and HEALTHCARE PROFESSIONALS ABOUT ALL FORMS of CAH; ADVOCATING for UNIVERSAL NEWBORN SCREENING; IMMEDIATE, APPROPRIATE EMERGENCY MEDICAL TREATMENT; and COMPREHENSIVE LIFELONG CARE; AS WELL AS SUPPORT SERVICES and RESOURCES VITAL to THE CAH COMMUNITY WORLDWIDE.

Before you give

Should I give to this charity?

Easy charity check
Look at where the money went

Of every $100 spent, about $83.50 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders22 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

78.18%of revenue went to mission work83.5% of expenses · Program services
5.10%of revenue went to fundraising5.5% of expenses
$93.61spent for every $100 of revenueRevenue covered expenses this year.
10.32%of revenue went to management and office costs11.0% of expenses
$0.96in assets for every $1 spent this yearSome assets cannot be spent right away.
52.2%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

  1. Who did you help? Ask for a recent story or report that shows real results.
  2. What will my money do? Ask exactly what your gift will pay for.
  3. Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $190,227 for DINA MATOS (EXECUTIVE DIRECTOR). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$1,204,352
Mission workProgram services$941,54978.18% of revenue83.5% of expenses
ManagementOffice and general costs$124,31310.32% of revenue11.0% of expenses
FundraisingAsking for donations$61,4765.10% of revenue5.5% of expenses
Revenue left after expensesReported annual surplus$77,0146.39% of revenueShown in gray on the chart
Total expenses$1,127,33893.61% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails
2025CurrentExpense mix: 83.5% mission · 11.0% management · 5.5% fundraisingTotal expenses: 93.61% of revenue
2024Expense mix: 83.7% mission · 11.0% management · 5.2% fundraisingTotal expenses: 85.43% of revenue
2023Expense mix: 84.3% mission · 10.0% management · 5.7% fundraisingTotal expenses: 95.90% of revenue
2022Expense mix: 85.8% mission · 8.3% management · 5.9% fundraisingTotal expenses: 91.45% of revenue
2021Expense mix: 84.8% mission · 9.3% management · 5.9% fundraisingTotal expenses: 71.44% of revenue
2020Expense mix: 84.3% mission · 9.9% management · 5.8% fundraisingTotal expenses: 95.24% of revenue
2019Expense mix: 84.7% mission · 8.3% management · 7.1% fundraisingTotal expenses: 103.81% of revenue
2018Expense mix: 85.0% mission · 7.7% management · 7.3% fundraisingTotal expenses: 98.69% of revenue

Money in and money out

Revenue$1,204,352
Expenses$1,127,338
Annual surplus $77,014 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$941,549 · 83.5% of expenses
Management and office costs$124,313 · 11.0% of expenses
Fundraising$61,476 · 5.5% of expenses
See all reported dollar amounts
Revenue$1,204,352
Expenses$1,127,338
Assets$1,077,723
Income$1,204,352
Contributions$628,182
Mission work (program services)$941,549
Fundraising$61,476
Management and general$124,313
Accounting fees$5,600
People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation
DINA MATOSEXECUTIVE DIRECTOR · 40 hrs/week $190,227
BEATRIZ PEREIRADIRECTOR FINANCE · 40 hrs/week $105,145

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (22)

DINA MATOSEXECUTIVE DIRECTOR

BEATRIZ PEREIRADIRECTOR FINANCE

KAREN BOGAARDSECRETARY

TIMOTHY ROBERTSTRUSTEE

STACEY SHACKLEYTRUSTEE

RENEIKA LIGHTBOURNETRUSTEE

MICHELE BACUSTRUSTEE

MARK KENNEDYTRUSTEE

MARIA MAEBIUSTRUSTEE

LOUISE FLEMING PHD RNTRUSTEE

LESLEY HOLROYDVICE CHAIR

KEYSHA BERRYTRUSTEE

KATHERINE FOWLERTRUSTEE

ALAN MACYTRUSTEE

JESSICA MARGOLIESCHAIR

JEFFREY PURNELLTRUSTEE

GEORGE LIMBERTTRUSTEE

CHARLES JARMONTRUSTEE

CARLOS DASILVATRUSTEE

BRIAN STAIRTREASURER

ANNE NEUMANNTRUSTEE

ALEXANDRA DUBOISIMM PAST CHAIR

About this charity

Recognized since
January 2001
Location
2414 MORRIS AVE STE 110, UNION, NJ 07083-5708
County
Union
In care of
% KELLY R LEIGHT
Primary officer
JESSICA MARGOLIES, CHAIR

How to reach them

Filing and classification

Latest tax year
2025
Tax period began
January 1, 2025
Return type
990
Tax preparer
SCHACHTER & DEPALMA LLC
NTEE classification
Diseases, Disorders & Medical Disciplines (G114)

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About this report: Information comes from public nonprofit records and may show the latest filing available.

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