FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS Charity Report

Public IRS 990 nonprofit record

FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS

EIN 26-3160079 · Fund Raising & Fund Distribution - Medical Research (H12)

What they do

ANGELMAN SYNDROME (AS) is A NEURODEVELOPMENTAL DISORDER CHARACTERIZED BY GLOBAL DEVELOPMENT DELAYS and SEVERE SPEECH IMPAIRMENT. A FEW INDIVIDUALS WITH AS DEVELOP FUNCTIONAL SPEECH, BUT MOST COMMUNICATE THROUGH A MIXTURE of GESTURES, EYE GAZE, ADAPTED SIGN LANGUAGE and AUGUMENTATIVE COMMUNICATION DEVICES. INDIVIDUALS WITH AS HAVE DEVELOPMENT DELAY and INTELLECTUAL DISABILITIES. CURRENT RESEARCH SUGGESTS THAT NEURONAL DEVELOPMENT OCCURS CORRECTLY IN AS, BUT NEURONAL FUNCTIONING is IMPAIRED. THIS NEURONAL IMPAIRMENT IMPACTS THE INDIVIDUALS ABILITY to LEARN IN THAT SKILLS ARE ACQUIRED LESS RAPIDLY THAN IN AGE-MATCHED PEERS. THE FOUNDATION for ANGELMAN SYNDROME THERAPEUTICS is AN ORGANIZATION of FAMILIES and PROFESSIONALS DEDICATED to FINDING A CURE for AS and RELATED DISORDERS THROUGH THE FUNDING of AN AGRESSIVE RESEARCH AGENDA, EDUCATION, ADVOCACY, and COMMUNITY SUPPORT. FAST is COMMITTED to ASSISTING INDIVIDUALS LIVING WITH AS to REALIZE THEIR FULL POTENTIAL and QUALITY of LIFE.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $88.80 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders16 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

171.33%of revenue went to mission work88.8% of expenses · Program services

7.40%of revenue went to fundraising3.8% of expenses

$192.86spent for every $100 of revenueSpending was higher than revenue this year.

14.14%of revenue went to management and office costs7.3% of expenses

$4.32in assets for every $1 spent this yearSome assets cannot be spent right away.

69.1%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $5,003,709 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $286,130 for RYAN K FISCHER (CHIEF OPERATING OFICER). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$5,388,260

Mission workProgram services$9,231,557171.33% of revenue88.8% of expenses

ManagementOffice and general costs$761,80714.14% of revenue7.3% of expenses

FundraisingAsking for donations$398,6057.40% of revenue3.8% of expenses

Total expenses$10,391,969192.86% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 88.8% mission · 7.3% management · 3.8% fundraisingTotal expenses: 192.86% of revenue

2023Expense mix: 94.9% mission · 4.2% management · 0.9% fundraisingTotal expenses: 355.96% of revenue

2022Expense mix: 89.5% mission · 6.5% management · 4.0% fundraisingTotal expenses: 17.02% of revenue

2021Expense mix: 88.4% mission · 7.9% management · 3.8% fundraisingTotal expenses: 146.71% of revenue

2020Expense mix: 87.3% mission · 6.9% management · 5.7% fundraisingTotal expenses: 32.62% of revenue

2019Expense mix: 94.1% mission · 1.8% management · 4.0% fundraisingTotal expenses: 79.49% of revenue

2018Expense mix: 90.5% mission · 6.6% management · 2.9% fundraisingTotal expenses: 55.89% of revenue

2017Expense mix: 96.6% mission · 1.7% management · 1.7% fundraisingTotal expenses: 64.50% of revenue

Money in and money out

Revenue$5,388,260

Expenses$10,391,969

Annual shortfall $5,003,709 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$9,231,557 · 88.8% of expenses

Management and office costs$761,807 · 7.3% of expenses

Fundraising$398,605 · 3.8% of expenses

See all reported dollar amounts

Revenue$5,388,260

Expenses$10,391,969

Assets$44,915,881

Income$9,721,341

Contributions$3,723,744

Mission work (program services)$9,231,557

Fundraising$398,605

Grants given$32,825,449

Average grant$538,122

Management and general$761,807

Executive compensation (total)$208,334

Investing fees$71,481

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

RYAN K FISCHERCHIEF OPERATING OFICER · 40 hrs/week $286,130

ALANA NEWHOUSEPRESIDENT/CEO · 40 hrs/week $245,000

KENA PEARSONCHIEF FINANCIAL OFFICER · 40 hrs/week $232,568

MICHELE GOLOMBUSKICHIEF DEVELOPMENT OFFICER · 40 hrs/week $210,068

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (16)

RYAN K FISCHERCHIEF OPERATING OFICER

ALANA NEWHOUSEPRESIDENT/CEO

KENA PEARSONCHIEF FINANCIAL OFFICER

MICHELE GOLOMBUSKICHIEF DEVELOPMENT OFFICER

ALLYSON BERENTCHIEF SCIENCE OFFICER

AMELIA BEATTYSECRETARY

BEN OCONNORDIRECTOR

GUY SHAPIRALTRESURER

JOHN SCHLUETERDIRECTOR

KARLY WARNERDIRECTOR

KELLY DAVIDDIRECTOR

LAUREN HOFFERDIRECTOR

MICHAEL HANRAHANVICE CHAIRPERSON AND TR

NORA XUDIRECTOR

ROY AZOUTDIRECTOR

RYAN JACOBCHAIRPERSON

About this charity

Recognized since: January 2008
Location: 5900 BALCONES DRIVE 8754, AUSTIN, TX 78731-4257
County: Travis
In care of: % MAIDDY DUNIGAN
Primary officer: RYAN JACOB, CHAIRPERSON

How to reach them

WebsiteVisit the charity’s website Emailinfo@cureangelman.org Phone(866) 783-0078

Filing and classification

Latest tax year: 2024
Tax period began: January 1, 2024
Return type: 990
Tax preparer: HEGRE MCMAHON & SCHIMMEL LLC
NTEE classification: Fund Raising & Fund Distribution - Medical Research (H12)
IRS tax category: Fund Raising & Fund Distribution
Grant-giving organization: Yes