CITIZENS UNITED FOR RESEARCH IN EPILEPSY Charity Report

Public IRS 990 nonprofit record

CITIZENS UNITED FOR RESEARCH IN EPILEPSY

EIN 36-4253176 · Medical Research (H125)

What they do

to Find A Cure for Epilepsy By Promoting and Funding Patient Focused Research.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $81.30 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders24 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

90.12%of revenue went to mission work81.3% of expenses · Program services

14.19%of revenue went to fundraising12.8% of expenses

$110.82spent for every $100 of revenueSpending was higher than revenue this year.

6.52%of revenue went to management and office costs5.9% of expenses

$1.88in assets for every $1 spent this yearSome assets cannot be spent right away.

99.0%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $540,013 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $344,007 for BETH DEAN (CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$4,989,172

Mission workProgram services$4,496,22890.12% of revenue81.3% of expenses

ManagementOffice and general costs$325,2426.52% of revenue5.9% of expenses

FundraisingAsking for donations$707,71514.19% of revenue12.8% of expenses

Total expenses$5,529,185110.82% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 81.3% mission · 5.9% management · 12.8% fundraisingTotal expenses: 110.82% of revenue

2024Expense mix: 83.6% mission · 5.4% management · 11.0% fundraisingTotal expenses: 102.41% of revenue

2023Expense mix: 84.4% mission · 5.5% management · 10.1% fundraisingTotal expenses: 96.93% of revenue

2022Expense mix: 86.4% mission · 5.6% management · 8.0% fundraisingTotal expenses: 92.97% of revenue

2021Expense mix: 86.3% mission · 5.4% management · 8.3% fundraisingTotal expenses: 96.66% of revenue

2020Expense mix: 87.8% mission · 4.2% management · 8.0% fundraisingTotal expenses: 102.80% of revenue

2019Expense mix: 84.9% mission · 5.9% management · 9.2% fundraisingTotal expenses: 83.68% of revenue

2018Expense mix: 82.7% mission · 3.5% management · 13.8% fundraisingTotal expenses: 80.11% of revenue

Money in and money out

Revenue$4,989,172

Expenses$5,529,185

Annual shortfall $540,013 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$4,496,228 · 81.3% of expenses

Management and office costs$325,242 · 5.9% of expenses

Fundraising$707,715 · 12.8% of expenses

See all reported dollar amounts

Revenue$4,989,172

Expenses$5,529,185

Assets$10,409,120

Income$6,719,515

Contributions$4,941,461

Mission work (program services)$4,496,228

Fundraising$707,715

Grants given$24,889,596

Average grant$161,621

Management and general$325,242

Executive compensation (total)$730,520

Stocks and bonds$8,185,042

Accounting fees$17,200

Investing fees$23,059

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

BETH DEANCEO · 38 hrs/week $344,007

LAURA LUBBERSCSO · 38 hrs/week $343,883

ALYSHA BIEHLDIRECTOR OF DEVELOPMENT · 38 hrs/week $170,346

DANA VIELMETTIDIRECTOR OF MARKETING AND COMMUNICATIONS · 38 hrs/week $164,251

PRIYA BALASURBRAMANIANDIRECTOR OF RESEARCH · 38 hrs/week $138,007

ELAINE OLOUGHLINASSOCIATE DIRECTOR OF RESEARCH INITIATIVES · 38 hrs/week $134,338

JOHN ANDERLUHCFO · 30 hrs/week $106,400

ANGELA MOTADIRECTOR OF MAJOR GIFTS · 38 hrs/week $100,904

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (24)

BETH DEANCEO

LAURA LUBBERSCSO

ALYSHA BIEHLDIRECTOR OF DEVELOPMENT

DANA VIELMETTIDIRECTOR OF MARKETING AND COMMUNICATIONS

PRIYA BALASURBRAMANIANDIRECTOR OF RESEARCH

ELAINE OLOUGHLINASSOCIATE DIRECTOR OF RESEARCH INITIATIVES

JOHN ANDERLUHCFO

ANGELA MOTADIRECTOR OF MAJOR GIFTS

WALTER KELLYDIRECTOR

STEVE AUSTINDIRECTOR

SHALEE CUNNEENSECRETARY

ROGER HELDMANTREASURER

MICHAEL ALEXRODDIRECTOR

MAUREEN FLOOD RABUSDIRECTOR

MATT SCHNEIDERDIRECTOR

LISA COTTONIMMEDIATE PAST CHAIR

KIM BORDENDIRECTOR

KELLY CERVANTESDIRECTOR

JUSTIN GOVERCHAIR

JONATHAN TUTEURDIRECTOR

IRINA COLONDIRECTOR

GREG MAYESDIRECTOR

DAVID REIFMANDIRECTOR

CARRIE GARMANDIRECTOR

About this charity

Recognized since: January 1999
Location: 420 N WABASH AVE STE 650, CHICAGO, IL 60611-3589
County: Cook
In care of: Beth Dean
Primary officer: Beth Dean, CEO

How to reach them

WebsiteVisit the charity’s website Phone(312) 255-1801

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: ECCEZION
NTEE classification: Medical Research (H125)
IRS tax category: Other Social Advocacy Organizations
Grant-giving organization: Yes