NOONAN SYNDROME FOUNDATION
EIN 46-1871620 · Professional Societies & Associations - Health Care (E03)
What they do
The Mission of The Noonan Syndrome Foundation is to Support, Educate and Advocate for Those Diagnosed With Noonans Syndrome By Supporting Research for The Development of Effective Treatments, and Ultimately, A Cure for The Syndrome. Noonans Syndrome is Identified By A Genetic Mutation In The RAS/MAPK Pathway and is Expressed In Many Ways, Over Numerous Systems In Patients. The Noonan Syndrome Foundation Supports Patients and Families By Providing Information Online and In Regular Publications, Holding Regional Events, Conferences and Support Groups. Connecting Patients and Families to Caregivers Familiar With Noonan Syndrome is of The Utmost Importance Ot The Foundation As Well. Another Goal is to Increase Public Awareness of Noonan Syndrome to Allow for Accurate Diagnosis By Medical Providers and to Allow for Those Not Affected By The Syndrome to Understand The Challenges of Those Affected and to Increase Financial Support
Should I give to this charity?
Of every $100 spent, about $100.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2024The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders6 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
Money made simple
Ask these three easy questions
- Who did you help? Ask for a recent story or report that shows real results.
- What will my money do? Ask exactly what your gift will pay for.
- Is this really the charity? Give only through its official website or confirmed phone number.
Worth asking: Expenses exceeded revenue by $78,864 this year. Ask whether that was planned or caused by a one-time event.
Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.
Has the pattern changed?
Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (6)
AMANDA BROWNTREASURER
CARI CONANTVICE PRESIDENT
CORY RENSHAWSECRETARY
KRYSTAL STEENBOARD MEMBER
LINDSAY HOMANBOARD MEMBER
TAMMY BOWERSBOARD MEMBER
About this charity
- Recognized since
- January 2013
- Location
- 605 US Highway 40 Ste 277, Blue Springs, MO 64014
- County
- Jackson
- In care of
- Amanda Brown
- Primary officer
- Amanda Brown, President
How to reach them
Filing and classification
- Latest tax year
- 2024
- Tax period began
- January 1, 2024
- Return type
- 990EZ
- NTEE classification
- Professional Societies & Associations - Health Care (E03)
- IRS tax category
- Professional Societies & Associations