NOONAN SYNDROME FOUNDATION
EIN 46-1871620 · Professional Societies & Associations - Health Care (E03)
What they do
The Mission of The Noonan Syndrome Foundation is to Support, Educate and Advocate for Those Diagnosed With Noonans Syndrome By Supporting Research for The Development of Effective Treatments, and Ultimately, A Cure for The Syndrome. Noonans Syndrome is Identified By A Genetic Mutation In The RAS/MAPK Pathway and is Expressed In Many Ways, Over Numerous Systems In Patients. The Noonan Syndrome Foundation Supports Patients and Families By Providing Information Online and In Regular Publications, Holding Regional Events, Conferences and Support Groups. Connecting Patients and Families to Caregivers Familiar With Noonan Syndrome is of The Utmost Importance Ot The Foundation As Well. Another Goal is to Increase Public Awareness of Noonan Syndrome to Allow for Accurate Diagnosis By Medical Providers and to Allow for Those Not Affected By The Syndrome to Understand The Challenges of Those Affected and to Increase Financial Support
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Of every $100 spent, about $100.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
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Basic facts we verified
Money report from 2024The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders6 people are listed in the latest report.
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Financial picture
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How reported expenses were divided
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Mission work is the Form 990 category called program services. These are the organization’s reported accounting categories, not an independent measure of results.
About this charity
- Recognized since
- January 2013
- Location
- 605 US HIGHWAY 40 STE 277, BLUE SPRINGS, MO 64014-3232
- County
- Jackson
- In care of
- Amanda Brown