RARE CANCER RESEARCH FOUNDATION Charity Report

Public IRS 990 nonprofit record

RARE CANCER RESEARCH FOUNDATION

EIN 46-3405526 · Cancer Research (H30)

What they do

THE RARE CANCER RESEARCH FOUNDATION is DEDICATED to CURING RARE CANCERS THROUGH STRATEGIC INVESTMENTS and COLLABORATIONS THAT CATALYZE EFFECTIVE RESEARCH and ACCELERATE DEPLOYMENT of PROMISING THERAPIES.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $77.60 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders13 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

302.84%of revenue went to mission work77.6% of expenses · Program services

30.06%of revenue went to fundraising7.7% of expenses

$390.49spent for every $100 of revenueSpending was higher than revenue this year.

57.59%of revenue went to management and office costs14.7% of expenses

$0.78in assets for every $1 spent this yearSome assets cannot be spent right away.

39.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $1,296,085 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $181,710 for MARSHALL THOMPSON (CTO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$446,172

Mission workProgram services$1,351,198302.84% of revenue77.6% of expenses

ManagementOffice and general costs$256,95857.59% of revenue14.7% of expenses

FundraisingAsking for donations$134,10130.06% of revenue7.7% of expenses

Total expenses$1,742,257390.49% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 77.6% mission · 14.7% management · 7.7% fundraisingTotal expenses: 390.49% of revenue

2024Expense mix: 73.5% mission · 19.9% management · 6.5% fundraisingTotal expenses: 126.34% of revenue

2023Expense mix: 70.5% mission · 29.5% management · 0.0% fundraisingTotal expenses: 61.86% of revenue

2022Expense mix: 99.5% mission · 0.5% management · 0.0% fundraisingTotal expenses: 886.87% of revenue

2021Expense mix: 99.5% mission · 0.5% management · 0.0% fundraisingTotal expenses: 16.69% of revenue

2020Expense mix: 99.8% mission · 0.2% management · 0.0% fundraisingTotal expenses: 230.32% of revenue

2019Expense mix: 99.4% mission · 0.6% management · 0.0% fundraisingTotal expenses: 78.02% of revenue

2018Expense mix: 86.6% mission · 13.4% management · 0.0% fundraisingTotal expenses: 60.90% of revenue

Money in and money out

Revenue$446,172

Expenses$1,742,257

Annual shortfall $1,296,085 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$1,351,198 · 77.6% of expenses

Management and office costs$256,958 · 14.7% of expenses

Fundraising$134,101 · 7.7% of expenses

See all reported dollar amounts

Revenue$446,172

Expenses$1,742,257

Assets$1,358,604

Income$446,172

Contributions$175,430

Mission work (program services)$1,351,198

Fundraising$134,101

Grants given$169,330

Average grant$33,866

Management and general$256,958

Accounting fees$41,460

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

MARSHALL THOMPSONCTO · 40 hrs/week $181,710Base $176,310 · Other $5,400

ROBIN KAGEYAMADIR DATA PLA · 40 hrs/week $175,531Base $170,143 · Other $5,388

AMBER SMITHDIR BIOBANKI · 40 hrs/week $150,013Base $150,001 · Other $12

BENJAMIN KAMPHAUSDATA ENGINEE · 40 hrs/week $138,995Base $133,595 · Other $5,400

HANA LITTLEFORDCLINICAL DAT · 40 hrs/week $125,592Base $120,192 · Other $5,400

BARBARA VAN HAREPRES. OF PAT · 40 hrs/week $118,042Base $117,742 · Other $300

CHRISTINE SPENCERHEAD OF PRIS · 40 hrs/week $104,553Base $104,545 · Other $8

VIRGINIA SPITZERCEO · 40 hrs/week $17,501Base $17,500 · Other $1

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (13)

MARSHALL THOMPSONCTO

ROBIN KAGEYAMADIR DATA PLA

AMBER SMITHDIR BIOBANKI

BENJAMIN KAMPHAUSDATA ENGINEE

HANA LITTLEFORDCLINICAL DAT

BARBARA VAN HAREPRES. OF PAT

CHRISTINE SPENCERHEAD OF PRIS

VIRGINIA SPITZERCEO

CHRIS HEERY MDCHAIRMAN

JANE WILKINSONDIRECTOR

KEITH LAABSDIRECTOR

RISHI BAGRODIADIRECTOR

RYAN PRIPSTEINDIRECTOR

About this charity

Recognized since: January 2014
Location: 703 FOSTER ST, DURHAM, NC 27701-2110
County: Durham
In care of: MARSHALL THOMPSON
Primary officer: MARSHALL THOMPSON, CTO

How to reach them

WebsiteVisit the charity’s website Emailinfo@rarecancer.org Phone(844) 434-7272 Officer phone(919) 827-8373

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: LANGDON & COMPANY LLP
NTEE classification: Cancer Research (H30)
IRS tax category: Cancer Research
Grant-giving organization: Yes