THE FAMILIESCN2A FOUNDATION INC Charity Report

Public IRS 990 nonprofit record

THE FAMILIESCN2A FOUNDATION INC

EIN 47-3169795 · Birth Defects & Genetic Diseases (G20)

What they do

THE FAMILIESCN2A is DEDICATED to FINDING EFFECTIVE TREATMENTS and ULTIMATELY A CURE for SCN2A RELATED AUTISM and EPILEPSY DISORDERS. THE FAMILIESCN2A FOUNDATION RAISES PUBLIC AWARENESS, PROVIDES PATIENT ADVOCACY, and SUPPORTS CLINICAL RESEARCH, GENETIC RESEARCH, and EARLY DETECTION.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $90.90 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders13 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

90.53%of revenue went to mission work90.9% of expenses · Program services

5.30%of revenue went to fundraising5.3% of expenses

$99.60spent for every $100 of revenueRevenue covered expenses this year.

3.77%of revenue went to management and office costs3.8% of expenses

$1.66in assets for every $1 spent this yearSome assets cannot be spent right away.

92.7%of its money came from giftsOther money may come from services or investments.

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Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $124,778 for LEAH SCHUST MYERS (EXECUTIVE DI). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$2,240,971

Mission workProgram services$2,028,78290.53% of revenue90.9% of expenses

ManagementOffice and general costs$84,4563.77% of revenue3.8% of expenses

FundraisingAsking for donations$118,8605.30% of revenue5.3% of expenses

Revenue left after expensesReported annual surplus$8,8730.40% of revenueShown in gray on the chart

Total expenses$2,232,09899.60% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 90.9% mission · 3.8% management · 5.3% fundraisingTotal expenses: 99.60% of revenue

2024Expense mix: 89.4% mission · 4.4% management · 6.2% fundraisingTotal expenses: 52.48% of revenue

2023Expense mix: 89.9% mission · 4.8% management · 5.3% fundraisingTotal expenses: 79.20% of revenue

2022Expense mix: 86.3% mission · 7.7% management · 6.0% fundraisingTotal expenses: 66.63% of revenue

2021Expense mix: 85.6% mission · 6.7% management · 7.7% fundraisingTotal expenses: 56.75% of revenue

2020Expense mix: 84.4% mission · 7.8% management · 7.8% fundraisingTotal expenses: 72.35% of revenue

2019Expense mix: 89.9% mission · 2.5% management · 7.6% fundraisingTotal expenses: 51.67% of revenue

2018Expense mix: 28.3% mission · 0.0% management · 0.0% fundraisingTotal expenses: 75.32% of revenue

Money in and money out

Revenue$2,240,971

Expenses$2,232,098

Annual surplus $8,873 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$2,028,782 · 90.9% of expenses

Management and office costs$84,456 · 3.8% of expenses

Fundraising$118,860 · 5.3% of expenses

See all reported dollar amounts

Revenue$2,240,971

Expenses$2,232,098

Assets$3,695,761

Income$2,344,483

Contributions$2,076,981

Mission work (program services)$2,028,782

Fundraising$118,860

Grants given$3,133,904

Average grant$84,700

Management and general$84,456

Executive compensation (total)$87,576

Stocks and bonds$2,475,282

Accounting fees$24,400

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

LEAH SCHUST MYERSEXECUTIVE DI · 40 hrs/week $124,778

JEFFREY COTTRELLCHIEF SCIENT · 40 hrs/week $25,000

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (13)

LEAH SCHUST MYERSEXECUTIVE DI

JEFFREY COTTRELLCHIEF SCIENT

CARLA FORBESBOARD MEMBER

ELOISE AUSTINTRUSTEE

EMILY PARKTRUSTEE

GEOFF WHITMANTRUSTEE

JENNIFER BURKECHAIR

MAURA BRAGGTRUSTEE

MERY OMANVICE CHAIR

MICHAEL VASEYTREASURER

MICHELLE LEWISSECRETARY

ROGER PREMOTRUSTEE

WILL HUTSONTRUSTEE

About this charity

Recognized since: January 2015
Location: 140 CANTERBURY CIR, E LONGMEADOW, MA 01028-5709
County: Adams
In care of: % CARLA M FORBES
Primary officer: MICHAEL VASEY, TREASURER

How to reach them

WebsiteVisit the charity’s website Emailcommunity.support@scn2a.org Phone(301) 252-8070 Officer phone(310) 591-9145

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: HOULDSWORTH RUSSO & COMPANY PC
NTEE classification: Birth Defects & Genetic Diseases (G20)
IRS tax category: Birth Defects & Genetic Diseases
Grant-giving organization: Yes