NATIONAL DOWN SYNDROME CONGRESS Charity Report

Public IRS 990 nonprofit record

NATIONAL DOWN SYNDROME CONGRESS

EIN 51-0163631 · Diseases, Disorders & Medical Disciplines (G25Z)

What they do

THE MISSION of THE NATIONAL DOWN SYNDROME CONGRESS is to PROVIDE INFORMATION, ADVOCACY, and SUPPORT CONCERNING ALL ASPECTS of LIFE for INDIVIDUALS WITH DOWN SYNDROME.NDSC EXISTS WITH THE PURPOSE to PROMOTE THE INTERESTS of PEOPLE WITH DOWN SYNDROME, to EDUCATE THROUGH AWARENESS, to ADVOCATE and ENSURE THEIR RIGHTS ARE RECOGNIZED and PROTECTED, to EMPOWER, and to INSPIRE and RESHAPE THE WAY PEOPLE UNDERSTAND and EXPERIENCE DOWN SYNDROME.THE VISION of THE NDSC is A WORLD WITH EQUAL RIGHTS and OPPORTUNITIES for PEOPLE WITH DOWN SYNDROME.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $78.10 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders17 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

70.02%of revenue went to mission work78.1% of expenses · Program services

13.39%of revenue went to fundraising14.9% of expenses

$89.63spent for every $100 of revenueRevenue covered expenses this year.

6.22%of revenue went to management and office costs6.9% of expenses

$0.40in assets for every $1 spent this yearSome assets cannot be spent right away.

47.0%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $193,886 for JAMES HUDSON (EXECUTIVE DIRECTOR). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$2,091,467

Mission workProgram services$1,464,40770.02% of revenue78.1% of expenses

ManagementOffice and general costs$130,1716.22% of revenue6.9% of expenses

FundraisingAsking for donations$280,04713.39% of revenue14.9% of expenses

Revenue left after expensesReported annual surplus$216,84210.37% of revenueShown in gray on the chart

Total expenses$1,874,62589.63% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 78.1% mission · 6.9% management · 14.9% fundraisingTotal expenses: 89.63% of revenue

2024Expense mix: 77.4% mission · 10.0% management · 12.6% fundraisingTotal expenses: 95.28% of revenue

2023Expense mix: 82.2% mission · 9.8% management · 8.0% fundraisingTotal expenses: 100.14% of revenue

2022Expense mix: 75.0% mission · 11.6% management · 13.5% fundraisingTotal expenses: 113.23% of revenue

2021Expense mix: 66.2% mission · 15.4% management · 18.4% fundraisingTotal expenses: 127.11% of revenue

2020Expense mix: 68.4% mission · 8.5% management · 23.1% fundraisingTotal expenses: 109.68% of revenue

2019Expense mix: 80.9% mission · 7.9% management · 11.2% fundraisingTotal expenses: 104.07% of revenue

2018Expense mix: 76.2% mission · 8.4% management · 15.4% fundraisingTotal expenses: 85.76% of revenue

Money in and money out

Revenue$2,091,467

Expenses$1,874,625

Annual surplus $216,842 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$1,464,407 · 78.1% of expenses

Management and office costs$130,171 · 6.9% of expenses

Fundraising$280,047 · 14.9% of expenses

See all reported dollar amounts

Revenue$2,091,467

Expenses$1,874,625

Assets$744,605

Income$2,174,732

Contributions$982,801

Mission work (program services)$1,464,407

Fundraising$280,047

Grants given$96,300

Average grant$9,630

Management and general$130,171

Executive compensation (total)$102,229

Accounting fees$12,663

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

JAMES HUDSONEXECUTIVE DIRECTOR · 40 hrs/week $193,886Base $157,243 · Other $36,643

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (17)

JAMES HUDSONEXECUTIVE DIRECTOR

DAVID CHAPLINSECRETARY

ZACHARY CARROLL4TH VICE PRESIDENT

SEAN SMITHPRESIDENT

NOEMI SPINAZZIDIRECTOR

NICOLE BAUMER3RD VICE PRESIDENT

KISHORE VELLODYPAST PRESIDENT

JEFF SCOTTDIRECTOR

HANNAH LACOURDIRECTOR

ANDRE PINEDATREASURER

CLAIR WALLACEDIRECTOR

CANDICE MOFFITDIRECTOR

BRADLEY CARLISLEDIRECTOR

BETH FORAKERDIRECTOR

BEAU BROOKS2ND VICE PRESIDENT

ANTHONY ZANFORDINO1ST VICE PRESIDENT

ANNA EBENSENDIRECTOR

About this charity

Recognized since: January 1975
Location: ATTN FUELED COLLECTIVE 3825 EDWARDS, CINCINNATI, OH 45209-1287
County: Hamilton
In care of: % N-A
Primary officer: ANDRE PINEDA, TREASURER

How to reach them

WebsiteVisit the charity’s website Emailinfo@ndsccenter.org Phone(770) 604-9500

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: CRI ADVISORS LLC
NTEE classification: Diseases, Disorders & Medical Disciplines (G25Z)
IRS tax category: Voluntary Health Organizations
Grant-giving organization: Yes