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RESTLESS LEGS SYNDROME FOUNDATION

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Public IRS 990 nonprofit record

RESTLESS LEGS SYNDROME FOUNDATION

EIN 56-1784846 · Medical Research (H99Z)

What they do

THE CORPORATION is ORGANIZED to INCREASE SCIENTIFIC and PUBLIC UNDERSTANDING of RESTLESS LEGS SYNDROME or RLS, to ENCOURAGE and PROVIDE FUNDING for RESEARCH LEADING to TREATMENTS and CURE for THE DISEASE, to PROVIDE SUPPORT to THOSE SUFFERING FROM THE DISEASE, to BE THE LEADING CENTER for INFORMATION ON ALL ASPECTS of THE DISEASE, and to CARRY ON SUCH OTHER ACTIVITIES RELATED to THE DISEASE, ITS TREATMENTS and CURE, AS MAY BE DESIGNATED BY THE BOARD FROM TIME to TIME.

Before you give

Should I give to this charity?

Easy charity check
Look at where the money went

Of every $100 spent, about $82.50 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders13 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

82.20%of revenue went to mission work82.5% of expenses · Program services
8.37%of revenue went to fundraising8.4% of expenses
$99.69spent for every $100 of revenueRevenue covered expenses this year.
9.12%of revenue went to management and office costs9.1% of expenses
$0.81in assets for every $1 spent this yearSome assets cannot be spent right away.
97.5%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

  1. Who did you help? Ask for a recent story or report that shows real results.
  2. What will my money do? Ask exactly what your gift will pay for.
  3. Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $148,289 for KARLA DZIENKOWSKI (EXECUTIVE DI). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$1,232,770
Mission workProgram services$1,013,29182.20% of revenue82.5% of expenses
ManagementOffice and general costs$112,4389.12% of revenue9.1% of expenses
FundraisingAsking for donations$103,1998.37% of revenue8.4% of expenses
Total expenses$1,228,92899.69% of revenue

The uncolored part of the ring is revenue above these reported expenses.

Has the pattern changed?

Each bar shows the share of annual spending reported for mission work, management, and fundraising.

202482.5% mission
202385.6% mission
202279.8% mission
202180.2% mission
202076.7% mission
201978.7% mission
201879.6% mission
201780.9% mission

Money in and money out

Revenue$1,232,770
Expenses$1,228,928
Annual surplus $3,842 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$1,013,291 · 82.5% of expenses
Management and office costs$112,438 · 9.1% of expenses
Fundraising$103,199 · 8.4% of expenses
See all reported dollar amounts
Revenue$1,232,770
Expenses$1,228,928
Assets$1,001,183
Income$1,708,869
Contributions$1,201,567
Mission work (program services)$1,013,291
Fundraising$103,199
Grants given$570,169
Average grant$38,011
Management and general$112,438
Executive compensation (total)$97,322
Stocks and bonds$531,360
Accounting fees$68,187
People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation
KARLA DZIENKOWSKIEXECUTIVE DI · 40 hrs/week $148,289Base $134,808 · Other $13,481

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (13)

KARLA DZIENKOWSKIEXECUTIVE DI

AVINASH AGGARWALDIRECTOR

BILL WENDTDIRECTOR

DAVID LOSKUTOFFSECRETARY

DONNIE KEEDIRECTOR(10/

GREG OBERLANDTREASURER

JEFFREY DURMERCHAIR

JIM FLANIKENDIRECTOR

KUNAL AGARWALDIRECTOR

LAURA SCOTT HOFFMANDIRECTOR(10-

LEWIS PHELPSDIRECTOR(10/

MARCIA BALLDIRECTOR

PAUL VICARYDIRECTOR(10-

About this charity

Recognized since
January 1993
Location
3006 BEE CAVES RD D-206, AUSTIN, TX 78746
County
Travis
In care of
KARLA DZIENKOWSKI
Primary officer
KARLA DZIENKOWSKI, EXECUTIVE DIRECTOR

How to reach them

Filing and classification

Latest tax year
2024
Tax period began
October 1, 2024
Return type
990
Tax preparer
REYNOLDS & FRANKE PC
NTEE classification
Medical Research (H99Z)
Grant-giving organization
Yes

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About this report: Information comes from public nonprofit records and may show the latest filing available.

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