INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME-ME
EIN 73-1416680 · Medical Research (H20Z)
What they do
THE MISSION of IACFS/ME is to PROMOTE, STIMULATE and COORDINATE THE EXCHANGE of IDEAS RELATED to CHRONIC FATIGUE SYNDRONE(CFS) and FIBROMYALGIA(FM) RESEARCH, PATIENT CARE and TREATMENT IN ADDITION, THE IACFS/ME PERIODICALLY REVIEWS THE CURRENT RESEARCH and TREATMENT LITERATURE and MEDIA REPORTS for THE BENEFIT of SCIENTISTS, CLINICIANS and PATIENTS.
Should I give to this charity?
Of every $100 spent, about $67.30 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders7 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
Money made simple
Ask these three easy questions
- Who did you help? Ask for a recent story or report that shows real results.
- What will my money do? Ask exactly what your gift will pay for.
- Is this really the charity? Give only through its official website or confirmed phone number.
Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.
Has the pattern changed?
Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (7)
CHARLES LAPPTREASURER
FRED FRIEDBERGPRESIDENT
FRIDBJORN SIGURDSSONBOARD MEMBER
IRINA ROZENFELDBOARD MEMBER
LILY CHUVICE PRESIDENT
LUIS NACULBOARD MEMBER
TIMOTHY HSIAOBOARD MEMBER
About this charity
- Recognized since
- January 1993
- Location
- PO BOX 583, STONY BROOK, NY 11790-0583
- County
- Suffolk
- In care of
- % HMC
- Primary officer
- CHARLES LAPP, TREASURER
How to reach them
Filing and classification
- Latest tax year
- 2025
- Tax period began
- January 1, 2025
- Return type
- 990EZ
- Tax preparer
- EASY OFFICE DBA JITASA
- NTEE classification
- Medical Research (H20Z)