KENNEDYS DISEASE ASSOCIATION INC Charity Report

Public IRS 990 nonprofit record

KENNEDYS DISEASE ASSOCIATION INC

EIN 77-0552005 · Nerve, Muscle & Bone Diseases Research (H50)

What they do

to EDUCATE, INFORM, and PROVIDE SUPPORT SERVICES REGARDING KENNEDYS DISEASE (SPINAL and BULBAR MUSCULAR ATROPHY).

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $91.30 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders13 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

134.52%of revenue went to mission work91.3% of expenses · Program services

9.62%of revenue went to fundraising6.5% of expenses

$147.40spent for every $100 of revenueSpending was higher than revenue this year.

3.25%of revenue went to management and office costs2.2% of expenses

$0.48in assets for every $1 spent this yearSome assets cannot be spent right away.

99.3%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $353,415 this year. Ask whether that was planned or caused by a one-time event.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$745,674

Mission workProgram services$1,003,105134.52% of revenue91.3% of expenses

ManagementOffice and general costs$24,2383.25% of revenue2.2% of expenses

FundraisingAsking for donations$71,7469.62% of revenue6.5% of expenses

Total expenses$1,099,089147.40% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Each bar shows the share of annual spending reported for mission work, management, and fundraising.

202591.3% mission

202497.7% mission

202398.5% mission

202295.7% mission

202196.2% mission

202096.9% mission

201997.2% mission

201898.0% mission

Money in and money out

Revenue$745,674

Expenses$1,099,089

Annual shortfall $353,415 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$1,003,105 · 91.3% of expenses

Management and office costs$24,238 · 2.2% of expenses

Fundraising$71,746 · 6.5% of expenses

See all reported dollar amounts

Revenue$745,674

Expenses$1,099,089

Assets$532,282

Income$764,062

Contributions$740,506

Mission work (program services)$1,003,105

Fundraising$71,746

Grants given$1,866,159

Average grant$71,775

Management and general$24,238

Stocks and bonds$352,167

Accounting fees$14,680

Investing fees$245

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

See everyone listed on the board or leadership roster (13)

DALE TRAXLERBOARD MEMBER

JAMESON PARKERVICE PRESIDE

JOAN SORENSENBOARD MEMBER

JOHN LAUBERTREASURER

KATHY THOMPSONSECRETARY

LEW MYERSBOARD MEMBER

NICK HOLDGATEBOARD MEMBER

PETE SARIANOBOARD MEMBER

RANDY SOO HOOFORMER BOARD

RON MOFFETTBOARD MEMBER

SIMON HILLFORMER BOARD

STEVEN RITTMASTERBOARD MEMBER

TERRY THOMPSONPRESIDENT

About this charity

Recognized since: January 2000
Location: 1445 WOODMONT LN NW UNIT 1805, ATLANTA, GA 30318
County: Madera
In care of: TERRY THOMPSON
Primary officer: TERRY THOMPSON, PRESIDENT

How to reach them

WebsiteVisit the charity’s website Phone(855) 532-7762

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: COLE NEWTON & DURAN CPAS
NTEE classification: Nerve, Muscle & Bone Diseases Research (H50)
IRS tax category: Nerve, Muscle & Bone Diseases Research
Grant-giving organization: Yes