VWM FAMILIES FOUNDATION INC
EIN 81-2058803 · Alliances & Advocacy - Voluntary Health/Medical (G01)
What they do
Vanishing White Matter Disease VWM is A Very Rare Neurological Condition That Destroys Myelin The Brains White Matter In Doing So It Permanently Affects Transmission of Brain Signals to The Rest of The Body VWM Primarily Affects Children and is Untreatable Incurable and Terminal In 2016 The VWM Families Foundation Was Formed to Raise Awareness of VWM to Raise Money for Research and to Support Families Living With VWM Within The United States and Worldwide
Should I give to this charity?
Of every $100 spent, about $100.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders5 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
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Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
No compensation was reported for these leaders. The complete board and leadership roster is shown below.
Board and leadership roster (5)
ALLYSON BUCKCO-FOUNDER AND PRESIDENT
BRETT HOLLBERGBOARD MEMBER PATIENT ADVOCACY
DONNA SKWIRUTBOARD MEMBER ALLIANCE RELATIONS
NICHOLAS BUCKCO-FOUNDER AND OPERATIONS
STEFANIE ROHRINGBOARD MEMBER
About this charity
- Recognized since
- January 2016
- Location
- 7 LANTERN LN, GREENWICH, CT 06831-4124
- County
- Fairfield
- In care of
- Nicholas J Buck
- Primary officer
- Nicholas J Buck
How to reach them
Filing and classification
- Latest tax year
- 2025
- Tax period began
- January 1, 2025
- Return type
- 990EZ
- NTEE classification
- Alliances & Advocacy - Voluntary Health/Medical (G01)
- IRS tax category
- Alliances & Advocacy - Voluntary Health/Medical