ADIRA FOUNDATION

What they do

to INVEST IN BETTER LIVES for PEOPLE WITH NEURODEGENERATIVE DISEASES, IN ADIRAS EARLY YEARS, WE WILL FOCUS PRINCIPALLY, THOUGH NOT EXCLUSIVELY, ON FIVE NEURODEGENERATIVE DISEASES: ALS, ALZHEIMERS and RELATED DEMENTIAS, HUNTINGTONS DISEASE, MULTIPLE SCLEROSIS, and PARKINSONS DISEASE. AT ADIRA WE ACCELERATE THE DESIGN and FUNDING of BETTER, MORE INTEGRATED HELP for PEOPLE WHO NEED IT NOW. WE ASSEMBLE A HANDFUL of DISEASES THAT STRUGGLE WITH MANY of THE SAME BIG THINGS. WE TAKE THEM OUT of ISOLATION WHERE THEYRE DEFINED NOT BY THEIR DIAGNOSIS BUT BY THEIR STRUGGLE. FROM A BIRDS-EYE VIEW, WE SEE THE COMMON THEMES and TRENDS. WE SPEAK WITH PEOPLE GOING THROUGH THIS JOURNEY to DESIGN BETTER PROGRAMS WITH THEM, NOT JUST for THEM. THEN WE FUND THOSE BIGGER, COMMON PROBLEMS WITH WHICH THEY SAY THEY NEED THE MOST HELP. SOME EXAMPLES of OUR WORK to DATE FOCUS ON CAREGIVING, NAVIGATION of DIFFERENT SERVICES, DISABILITY, EQUITY, MEASUREMENTS for QUALITY of LIFE, and MENTAL HEALTH.