SARAS CURE CLEAR CELL SARCOMA FOUNDATION

What they do

SUMMARY of ACTIVITIES JANUARY- OUR EXECUTIVE DIRECTOR PARTICIPATED IN A GLOBAL WEBINAR HOSTED BY THE SARCOMA FOUNDATION of AMERICA to PRESENT A PRIVATE/PUBLIC PARTNERSHIP CALLED CURE DRUG REPURPOSING COLLABORATORY (CDRC), WITH THE INITIATIVE to FIND EXISTING DRUGS for RARE SARCOMA.: CO-HOSTED OUR LARGEST ANNUAL FUNDRAISER IN CHARLESTON SC. CONTINUED to COLLABORATE WITH THE CLINICAL/RESEARCH COMMUNITY THROUGH MONTHLY MEETINGS WITH SARC, and THE CCS TISSUE COLLECTION DOD GRANT COMMUNITY of STAKEHOLDERS. FEBRUARY & MARCH TEAMED UP WITH XCURES to CREATE A PARTNERSHIP CONTRACT for THE PURPOSE of COLLECTING ELECTRONIC HEALTH RECORDS ON CCS PATIENTS, AN OUTGROWTH of THE CDRC PROJECT. THESE REAL WORLD RESULTS WERE PRESENTED AT THE ANNUAL SARCOMA CONFERENCE to THE SARCOMA COMMUNITY. PLANS for EXPANSION INTO 2025. APRIL - INAUGURAL MEETING WITH DR. KEVIN JONES SURGICAL ONCOLOGIST to PLAN A FIRST EVER CCS SYMPOSIUM IN CHARLESTON SC. SEPTEMBER. THIS MEETING is for THE PURPOSE of COLLECTING REAL WO