DYRK1A SYNDROME US Charity Report

Public IRS 990 nonprofit record

DYRK1A SYNDROME US

EIN 83-3342162 · Birth Defects & Genetic Diseases Research (H20)

What they do

DYRK1A SYNDROME US is A NON-PROFIT 501(C)3, TAX EXEMPT ORGANIZATION WITH A MAIN PURPOSE of IMPROVING THE QUALITY of LIFE for THOSE AFFECTED BY DYRK1A SYNDROME THROUGH SUPPORT, RDUCATION, RESEARCH and COLLABORATION

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $88.90 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders7 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

328.88%of revenue went to mission work88.9% of expenses · Program services

$370.05spent for every $100 of revenueSpending was higher than revenue this year.

41.17%of revenue went to management and office costs11.1% of expenses

$2.44in assets for every $1 spent this yearSome assets cannot be spent right away.

99.9%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $126,475 this year. Ask whether that was planned or caused by a one-time event.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$46,834

Mission workProgram services$154,028328.88% of revenue88.9% of expenses

ManagementOffice and general costs$19,28141.17% of revenue11.1% of expenses

FundraisingAsking for donations0.00% of revenue0.0% of expenses

Total expenses$173,309370.05% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Each bar shows the share of annual spending reported for mission work, management, and fundraising.

202588.9% mission

202478.7% mission

202373.7% mission

202270.5% mission

20213.9% mission

Money in and money out

Revenue$46,834

Expenses$173,309

Annual shortfall $126,475 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$154,028 · 88.9% of expenses

Management and office costs$19,281 · 11.1% of expenses

See all reported dollar amounts

Revenue$46,834

Expenses$173,309

Assets$422,927

Income$46,834

Contributions$46,775

Mission work (program services)$154,028

Grants given$116,265

Average grant$58,133

Management and general$19,281

Accounting fees$4,549

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

See everyone listed on the board or leadership roster (7)

ADRIANNE APODACASECRETARY

AMY J CLUGSTONPRESIDENT

ANA DOWNEYDIRECTOR

CAROLLE ONEILDIRECTOR

KATIE WATSONDIRECTOR

PRISCILLA GUZMANTREASURER

SARAH GLASSDIRECTOR

About this charity

Recognized since: January 2019
Location: 1745 LORNA LANE, OTSEGO, MI 49078
County: Allegan
In care of: AMY J CLUGSTON
Primary officer: AMY J CLUGSTON, PRESIDENT

How to reach them

WebsiteVisit the charity’s website Phone(269) 492-4790

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: TKH GROUP PC
NTEE classification: Birth Defects & Genetic Diseases Research (H20)
IRS tax category: Birth Defects & Genetic Diseases Research
Grant-giving organization: Yes