UNDIAGNOSED DISEASES NETWORK FOUNDATION Charity Report

Public IRS 990 nonprofit record

UNDIAGNOSED DISEASES NETWORK FOUNDATION

EIN 87-3474254 · Fund Raising & Fund Distribution - Voluntary Health Associations (G12)

What they do

THE UDNFS MISSION is to IMPROVE ACCESS to DIAGNOSIS, RESEARCH, and CARE for ALL WITH UNDIAGNOSED and ULTRA-RARE CONDITIONS. WE AIM to FOSTER COLLABORATION BETWEEN PATIENTS, CLINICIANS, and SCIENTISTS to ENHANCE THE QUALITY of LIFE of UNDIAGNOSED PATIENTS. WE DO THIS BY MITIGATING BARRIERS to EQUITY and ACCESS IN HEALTHCARE; SETTING STANDARDS for PATIENT MANAGEMENT; and BRIDGING DIAGNOSIS and THERAPEUTICS AS WELL AS RESEARCH and CLINICAL CARE IN UNDIAGNOSED and ULTRA-RARE DISEASES.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $62.50 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders15 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

593.61%of revenue went to mission work62.5% of expenses · Program services

$950.43spent for every $100 of revenueSpending was higher than revenue this year.

$0.36in assets for every $1 spent this yearSome assets cannot be spent right away.

100.0%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $1,023,686 this year. Ask whether that was planned or caused by a one-time event.

Pay context: The highest compensation shown in this filing is $142,495 for MICHELE HERNDON (HIGHEST COMPENSATED EMPLOYEE). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$120,373

Mission workProgram services$714,549593.61% of revenue62.5% of expenses

ManagementOffice and general costs0.00% of revenue0.0% of expenses

FundraisingAsking for donations0.00% of revenue0.0% of expenses

Total expenses$1,144,059950.43% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 62.5% mission · 0.0% management · 0.0% fundraisingTotal expenses: 950.43% of revenue

2024Expense mix: 98.0% mission · 1.4% management · 0.6% fundraisingTotal expenses: 434.02% of revenue

2023Expense mix: 78.5% mission · 14.0% management · 7.5% fundraisingTotal expenses: 8.46% of revenue

Money in and money out

Revenue$120,373

Expenses$1,144,059

Annual shortfall $1,023,686 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$714,549 · 62.5% of expenses

See all reported dollar amounts

Revenue$120,373

Expenses$1,144,059

Assets$410,501

Income$120,373

Contributions$120,332

Mission work (program services)$714,549

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

MICHELE HERNDONHIGHEST COMPENSATED EMPLOYEE · 40 hrs/week $142,495

DANIELLE CARNIVALCEO · 40 hrs/week $113,542

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (15)

MICHELE HERNDONHIGHEST COMPENSATED EMPLOYEE

DANIELLE CARNIVALCEO

EFFIE PARKSBOARD MEMBER

F SESSIONS COLEVICE CHAIR/CHAIR

GERALD SWEENEYBOARD MEMBER/VICE CHAIR

KELLY CERVENTESSECRETARY

LILIANA FERNANDEZBOARD MEMBER

MAX BRONSTEINBOARD MEMBER

MEGHAN HALLEYEMERITUS BOARD MEMBER

PARVATHY KRISHNANBOARD MEMBER

SIKA DUNYOHCHAIR/BOARD MEMBER

STEPHAN ZUCHNERBOARD MEMBER

TANIA SIMONCELLIBOARD MEMBER

TOM KELLEYBOARD MEMBER

TROY EVANSTREASURER

About this charity

Recognized since: January 2023
Location: 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
County: District of Columbia
In care of: TROY EVANS
Primary officer: TROY EVANS, TREASURER

How to reach them

WebsiteVisit the charity’s website Phone(202) 599-4465 Officer phone(801) 792-2697

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990EZ
Tax preparer: EASY OFFICE DBA JITASA
NTEE classification: Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
IRS tax category: Fund Raising & Fund Distribution