UNITED PORPHYRIAS ASSOCIATION INC Charity Report

Public IRS 990 nonprofit record

UNITED PORPHYRIAS ASSOCIATION INC

EIN 87-4143089 · Specifically Named Diseases (G80)

What they do

The United Porphyrias Association is Committed to Improving The Quality of Life of The Porphyria Patient Community and is Relentlessly Focused On Advancing Disease Awareness, Research, and Therapies In All The Porphyrias.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $41.50 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders7 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

23.12%of revenue went to mission work41.5% of expenses · Program services

$33.88spent for every $100 of revenueRevenue covered expenses this year.

32.53%of revenue went to management and office costs58.5% of expenses

$4.58in assets for every $1 spent this yearSome assets cannot be spent right away.

59.8%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $74,063 for KRISTEN WHEEDEN (PRESIDENT). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$458,112

Mission workProgram services$105,90023.12% of revenue41.5% of expenses

ManagementOffice and general costs$149,00732.53% of revenue58.5% of expenses

FundraisingAsking for donations0.00% of revenue0.0% of expenses

Revenue left after expensesReported annual surplus$203,20544.36% of revenueShown in gray on the chart

Total expenses$254,90755.64% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 41.5% mission · 58.5% management · 0.0% fundraisingTotal expenses: 55.64% of revenue

2023Expense mix: 43.7% mission · 56.3% management · 0.0% fundraisingTotal expenses: 42.80% of revenue

2022Expense mix: 38.2% mission · 61.8% management · 0.0% fundraisingTotal expenses: 17.27% of revenue

Money in and money out

Revenue$752,353

Expenses$254,907

Annual surplus $497,446 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$105,900 · 41.5% of expenses

Management and office costs$149,007 · 58.5% of expenses

See all reported dollar amounts

Revenue$752,353

Expenses$254,907

Assets$1,168,112

Income$458,112

Contributions$449,648

Mission work (program services)$105,900

Management and general$149,007

Accounting fees$3,162

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

KRISTEN WHEEDENPRESIDENT · 40 hrs/week $74,063

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (7)

KRISTEN WHEEDENPRESIDENT

ANDREW L TURELLCHAIRMAN

ARIEL LAGERDIRECTOR

HETANSHI NAIK PHD MS CGCSECRETARY

HON JOSEPH CROWLEYDIRECTOR

ROBERT J DESNICK PHD MDDIRECTOR

SHAWN WILLISTREASURER

About this charity

Recognized since: January 2022
Location: 7315 WISCONSIN AVE STE 400W, BETHESDA, MD 20814-3224
County: Montgomery
In care of: KRISTEN WHEEDEN
Primary officer: KRISTEN WHEEDEN, President

How to reach them

WebsiteVisit the charity’s website Emailinfo@porphyria.org Phone(800) 868-1292

Filing and classification

Latest tax year: 2024
Tax period began: July 1, 2024
Return type: 990
Tax preparer: WESTROCK TAX & CONSULTING
NTEE classification: Specifically Named Diseases (G80)
IRS tax category: Specifically Named Diseases