LCC FOUNDATION INC
EIN 88-1908603 · Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
What they do
In 2024, The LCC Foundation Advanced Its Mission By Supporting Approximately 40 Families Worldwide Affected By Leukoencephalopathy With Brain Calcifications and Cysts (LCC/Labrune Syndrome), Including 15 Newly Diagnosed Families. The Foundation Provided Patient Resources, Educational Packets, and Virtual Support, Distributed Over 200 Informational Materials to Families and Medical Providers, and Launched Awareness Campaigns That Reached An Estimated 50,000 People Online. The Organization Also Collaborated With Researchers, Participated In Three National Rare Disease Conferences, Co-led A Global Patient Registry Initiative, and Engaged With The FDA to Ensure Patient Voices Are Represented In Early Research and Drug Development Efforts.
Financial picture
About this charity
- Recognized since
- January 2022
- Location
- 105 Eckstein Lane, Lake Saint Louis, MO 63367
- County
- Saint Charles
- In care of
- Ashley Dike
- Primary officer
- Ashley Dike, Executive Director
How to reach them
Filing and classification
- Latest tax year
- 2024
- Tax period began
- May 1, 2024
- Return type
- 990EZ
- NTEE classification
- Fund Raising & Fund Distribution - Voluntary Health Associations (G12)
- IRS tax category
- Fund Raising & Fund Distribution
More public IRS record details
These are classification codes from the organization’s public nonprofit record.
- Subsection
- 03
- Affiliation
- 3
- Classification
- 1000
- Deductibility
- 1
- Foundation
- 15