SOCIETY FOR INHERITED METABOLIC DISORDERS Charity Report

Public IRS 990 nonprofit record

SOCIETY FOR INHERITED METABOLIC DISORDERS

EIN 93-0721765 · Diseases, Disorders & Medical Disciplines (G2XZ)

What they do

to INCREASE KNOWLEDGE of and PROMOTE RESEARCH IN INBORN ERRORS of METABOLISM IN HUMANS, and to STIMULATE INTERACTIONS BETWEEN CLINICIANS and INVESTIGATORS IN INBORN ERRORS of METABOLISM. to SEEK to FOSTER TRAINING and MAINTENANCE of A CORE of QUALIFIED PHYSICIANS, FELLOWS, NUTRITIONISTS, NURSES and LABORATORY STAFF.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $83.10 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2024The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders19 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

89.54%of revenue went to mission work83.1% of expenses · Program services

$107.73spent for every $100 of revenueSpending was higher than revenue this year.

18.19%of revenue went to management and office costs16.9% of expenses

$1.34in assets for every $1 spent this yearSome assets cannot be spent right away.

71.2%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Worth asking: Expenses exceeded revenue by $58,806 this year. Ask whether that was planned or caused by a one-time event.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2024

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$760,869

Mission workProgram services$681,29189.54% of revenue83.1% of expenses

ManagementOffice and general costs$138,38418.19% of revenue16.9% of expenses

FundraisingAsking for donations0.00% of revenue0.0% of expenses

Total expenses$819,675107.73% of revenue

Expenses were greater than revenue, so the colored ring fills the available $100 and the total above 100% is shown below.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2024CurrentExpense mix: 83.1% mission · 16.9% management · 0.0% fundraisingTotal expenses: 107.73% of revenue

2023Expense mix: 87.7% mission · 12.3% management · 0.0% fundraisingTotal expenses: 91.31% of revenue

2022Expense mix: 86.8% mission · 13.2% management · 0.0% fundraisingTotal expenses: 81.14% of revenue

2021Expense mix: 89.9% mission · 10.1% management · 0.0% fundraisingTotal expenses: 95.13% of revenue

2020Expense mix: 82.1% mission · 17.9% management · 0.0% fundraisingTotal expenses: 113.56% of revenue

2019Expense mix: 84.4% mission · 15.6% management · 0.0% fundraisingTotal expenses: 77.06% of revenue

2016Expense mix: 86.3% mission · 13.7% management · 0.0% fundraisingTotal expenses: 102.49% of revenue

Money in and money out

Revenue$760,869

Expenses$819,675

Annual shortfall $58,806 Expenses were higher than revenue for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$681,291 · 83.1% of expenses

Management and office costs$138,384 · 16.9% of expenses

See all reported dollar amounts

Revenue$760,869

Expenses$819,675

Assets$1,098,216

Income$760,869

Contributions$541,655

Mission work (program services)$681,291

Management and general$138,384

Stocks and bonds$428,576

Accounting fees$4,300

People

Leadership and board

Tax year 2024

Names, titles, time, and compensation below are reported by the organization on its Form 990.

No compensation was reported for these leaders. The complete board and leadership roster is shown below.

Board and leadership roster (19)

KIRKLAND WILSONBOARD MEMBER AT LARGE

WENDY SMITHBOARD MEMBER AT LARGE

TIMOTHY WOODBOARD MEMBER AT LARGE

SUSAN BERRYPRESIDENT & BOARD MEMBER

SHIDEH MOFIDIBOARD MEMBER AT LARGE

SARAH VIALLBOARD MEMBER AT LARGE

REID SUTTONBOARD MEMBER AT LARGE

REBECCA GANETZKYED COMMITTEE CHAIR & BOARD MEMBER

PETE BAKERMEMBERSHIP CHAIR & BOARD MEMBER

MOLLY CRENSHAWBOARD MEMBER AT LARGE

AMARLIS SANCHEZ VALLEBOARD MEMBER AT LARGE

KARA SIMPSONBOARD MEMBER AT LARGE

IRINI MANOLIPROGRAM COMM. CHAIR & BOARD MEMBER

GERARD BERRYPAST PRESIDENT & BOARD MEMBER

DEBRA REGIERPRESIDENT-ELECT & BOARD MEMBER

DAVID SINASACBOARD MEMBER AT LARGE

CARY HARDINGTREASURER & BOARD MEMBER

BRUCE BARSHOPSECRETARY & BOARD MEMBER

ASHLEE STILESBOARD MEMBER AT LARGE

About this charity

Recognized since: January 1979
Location: 1047 SE WALTER CIR, TROUTDALE, OR 97060-4551
County: Multnomah
In care of: CARY HARDING MD
Primary officer: CARY HARDING MD, TREASURER

How to reach them

WebsiteVisit the charity’s website Phone(503) 939-0695 Officer phone(503) 636-9228

Filing and classification

Latest tax year: 2024
Tax period began: July 1, 2024
Return type: 990
Tax preparer: PERKINS & COMPANY PC
NTEE classification: Diseases, Disorders & Medical Disciplines (G2XZ)