Charity information

What they do

MLD Foundation Works With Families, Researchers, Regulators, Industry, and Policy-makers to Improve The Quality of Life for Those With MLD Including Standards of Clinical Care and Clinical Research Excellence, Develop and Implement Newborn Screening Tests and Policies, Develop and Improve Therapies for MLD, and Influence & Fund Research for A Cure. Metachromatic Leukodystrophy (MLD) is A Rare Genetic Neuro-metabolic Degenerative Terminal Condition Affecting People, Predominantly Infants and Children, Throughout The World. Our Slogan, "We C.A.R.E."(R) Reflects Our Mission of Compassion, Awareness, Research, and Education. Today There Are No Adequate Therapies In The US and There is No Cure. Clinical Care and Diagnostics Including Newborn Screening, Are Improving But Have Much More to Improve Upon. The MLD Foundation Was Formed In May 2001 and Serves Newly Diagnosed Families As Well As Those At All Stages of The MLD Journey In The US and Internationally.