SCA27B ATAXIA FOUNDATION
EIN 93-1451051 · Mutual & Membership Benefit N.E.C. (Y99)
What they do
Year 2025: 1) Attended and Presented At Patient & Researcher Conferences - Annual Ataxia Conference (Las Vegas), Ataxia Clinical Training (Las Vegas), International Congress of Ataxia Research (ICAR)(Amsterdam), EuroAtaxia (Amsterdam), National Ataxia Foundations Face to Face Meeting (Minneapolis), National Organization of Rare Diseases, TN Chapter (Nashville). 2) Maintained & Updated Educational Website Sca27b.org, 3) Hosted Monthly Zoom Meetings for Patients With Invited Guest Speakers, 4) Collaborated With Many Other Ataxia Organizations: NAF, EuroAtaxia, FARA, Ataxie Canada, Ataxia UK, Ataxia Global Initiative (AGI). 5) Active Member of AGIs SCA27B Study Group. 6) Raised Funds to Provide Research Grants In 2026. 7) Maintained Private & Public Facebook SCA27B Facebook Groups. 7) Hosted Webinars for Genetic Testing to Members. 8) Distributed Surveys for Research Data and Will Be Published In 2026 With UChicago for Paper On Lifestyle/environmental Factors That Influence Disease Onset
Should I give to this charity?
Of every $100 spent, about $100.00 was reported for mission work. Use the spending picture below and ask what results that work produced.
Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.
Basic facts we verified
IRS warning checkNo IRS revocation warning appears in this data.
Money report from 2025The charity has a recent tax report to read.
They explain their jobThe charity tells us what it is trying to do.
They name their leaders9 people are listed in the latest report.
You can reach themThey list contact information, so you can ask questions.
Money made simple
Ask these three easy questions
- Who did you help? Ask for a recent story or report that shows real results.
- What will my money do? Ask exactly what your gift will pay for.
- Is this really the charity? Give only through its official website or confirmed phone number.
Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.
Financial picture
A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.
How each $100 of revenue was used
The large number compares each expense with revenue. The smaller number shows its share of total expenses.
Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.
Has the pattern changed?
Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.
Money in and money out
Reported spending amounts
Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.
See all reported dollar amounts
Leadership and board
Names, titles, time, and compensation below are reported by the organization on its Form 990.
See everyone listed on the board or leadership roster (9)
ANDY NYEFACEBOOK DISCUSSION GROUP ADMIN
BILL NYESCIENTIFIC ADVISOR
CORINNA HOGANSECRETARY
ERIC LEGGBOARD MEMBER
JACK BARILEBOARD MEMBER
JENNIFER AUSTINPRESIDENT OF THE BOARD OF DIRECTORS
MARGIT BURMEISTERGENETICS ADVISOR
MARY HOGANEXECUTIVE DIRECTOR
SARAH YINGMEDICAL ADVISOR
About this charity
- Recognized since
- January 2024
- Location
- PO Box 10702, Lynchburg, VA 24506
- County
- Rutherford
- In care of
- Mary Hogan
- Primary officer
- Mary Hogan, Executive Director
How to reach them
Filing and classification
- Latest tax year
- 2025
- Tax period began
- January 1, 2025
- Return type
- 990EZ
- NTEE classification
- Mutual & Membership Benefit N.E.C. (Y99)
- IRS tax category
- Mutual & Membership Benefit N.E.C.