NATIONAL TUBEROUS SCLEROSIS ASSOCIATION Charity Report

Public IRS 990 nonprofit record

NATIONAL TUBEROUS SCLEROSIS ASSOCIATION

EIN 95-3018799 · Diseases, Disorders & Medical Disciplines (G030)

What they do

to IMPROVE QUALITY of LIFE for EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE and EXPANDING ACCESS to LIFELONG SUPPORT.

Before you give

Should I give to this charity?

Easy charity check

Look at where the money went

Of every $100 spent, about $79.60 was reported for mission work. Use the spending picture below and ask what results that work produced.

Plain answer: A tax form cannot prove that a charity is doing good. It can show how the charity says it spent its money—and point out questions you should ask.

Basic facts we verified

IRS warning checkNo IRS revocation warning appears in this data.

Money report from 2025The charity has a recent tax report to read.

They explain their jobThe charity tells us what it is trying to do.

They name their leaders37 people are listed in the latest report.

You can reach themThey list contact information, so you can ask questions.

Money made simple

74.10%of revenue went to mission work79.6% of expenses · Program services

12.58%of revenue went to fundraising13.5% of expenses

$93.13spent for every $100 of revenueRevenue covered expenses this year.

6.45%of revenue went to management and office costs6.9% of expenses

$1.97in assets for every $1 spent this yearSome assets cannot be spent right away.

62.5%of its money came from giftsOther money may come from services or investments.

Ask these three easy questions

Who did you help? Ask for a recent story or report that shows real results.
What will my money do? Ask exactly what your gift will pay for.
Is this really the charity? Give only through its official website or confirmed phone number.

Pay context: The highest compensation shown in this filing is $287,368 for KARI LUTHER ROSBECK (PRESIDENT & CEO). Compare pay with organizations of similar size and complexity.

Bottom line: Do not decide from a name, mission statement, or tax status alone. Look at where the money went, then ask what changed, who was helped, and what your gift will do. YouCanGiveBack does not endorse or grade organizations.

Money

Financial picture

Tax year 2025

A plain-language look at the latest Form 990 figures available. These numbers help you ask better questions; they do not, by themselves, rate whether a charity is good or bad.

$100revenue

How each $100 of revenue was used

The large number compares each expense with revenue. The smaller number shows its share of total expenses.

Total reported revenue$9,807,320

Mission workProgram services$7,267,68274.10% of revenue79.6% of expenses

ManagementOffice and general costs$632,6586.45% of revenue6.9% of expenses

FundraisingAsking for donations$1,233,46212.58% of revenue13.5% of expenses

Revenue left after expensesReported annual surplus$673,5186.87% of revenueShown in gray on the chart

Total expenses$9,133,80293.13% of revenue

Gray means reported revenue left after expenses for this filing year. It does not necessarily mean cash sitting in a bank account.

Has the pattern changed?

Colored bars = expense mix: how each year’s expenses were divided. Total expenses vs. revenue shows whether the charity spent less or more than it received. The current filing is first.

YearExpense mixDetails

2025CurrentExpense mix: 79.6% mission · 6.9% management · 13.5% fundraisingTotal expenses: 93.13% of revenue

2024Expense mix: 77.5% mission · 6.9% management · 15.6% fundraisingTotal expenses: 86.59% of revenue

2023Expense mix: 79.8% mission · 6.6% management · 13.6% fundraisingTotal expenses: 84.54% of revenue

2022Expense mix: 77.9% mission · 8.0% management · 14.1% fundraisingTotal expenses: 90.51% of revenue

2021Expense mix: 79.6% mission · 7.5% management · 12.9% fundraisingTotal expenses: 76.19% of revenue

2020Expense mix: 73.5% mission · 9.2% management · 17.4% fundraisingTotal expenses: 105.73% of revenue

2019Expense mix: 72.6% mission · 9.3% management · 18.1% fundraisingTotal expenses: 83.97% of revenue

2018Expense mix: 78.3% mission · 8.6% management · 13.0% fundraisingTotal expenses: 106.87% of revenue

Money in and money out

Revenue$9,807,320

Expenses$9,133,802

Annual surplus $673,518 Revenue was higher than expenses for this filing year.

Reported spending amounts

Mission work means the Form 990 category called program services. These are reported accounting categories—not an independent measurement of results.

Mission work (program services)$7,267,682 · 79.6% of expenses

Management and office costs$632,658 · 6.9% of expenses

Fundraising$1,233,462 · 13.5% of expenses

See all reported dollar amounts

Revenue$9,807,320

Expenses$9,133,802

Assets$18,024,174

Income$10,201,372

Contributions$6,133,143

Mission work (program services)$7,267,682

Fundraising$1,233,462

Grants given$7,400,342

Average grant$58,270

Management and general$632,658

Stocks and bonds$1,241,279

Accounting fees$24,488

People

Leadership and board

Tax year 2025

Names, titles, time, and compensation below are reported by the organization on its Form 990.

People reported as paid

Person and titleCompensation

KARI LUTHER ROSBECKPRESIDENT & CEO · 54 hrs/week $287,368Base $254,957 · Other $32,411

STEVEN ROBERDSCHIEF SCIENTIFIC OFFICER · 45 hrs/week $287,347Base $256,275 · Other $31,072

DEAN RAGER-AGUIARVICE PRESIDENT, TRANSLATIO · 45 hrs/week $225,306Base $191,780 · Other $33,526

LISA MOSSVICE PRESIDENT, DONOR RELA · 45 hrs/week $164,847Base $136,007 · Other $28,840

JAMIE SAYLORCHIEF FINANCIAL OFFICER · 45 hrs/week $148,811Base $143,473 · Other $5,338

HEATHER RADTKEDIRECTOR, CLINICAL PROGRAMS · 45 hrs/week $135,437Base $119,764 · Other $15,673

GAIL SAUNDERSDIRECTOR, COMMUNITY PROGRAMS · 45 hrs/week $118,717Base $103,236 · Other $15,481

Compensation alone does not tell whether pay is reasonable. Consider the charity’s size, work, location, and results.

See everyone listed on the board or leadership roster (37)

KARI LUTHER ROSBECKPRESIDENT & CEO

STEVEN ROBERDSCHIEF SCIENTIFIC OFFICER

DEAN RAGER-AGUIARVICE PRESIDENT, TRANSLATIO

LISA MOSSVICE PRESIDENT, DONOR RELA

JAMIE SAYLORCHIEF FINANCIAL OFFICER

HEATHER RADTKEDIRECTOR, CLINICAL PROGRAMS

GAIL SAUNDERSDIRECTOR, COMMUNITY PROGRAMS

NOOR PANJWANIDIRECTOR

LESLEY HOLMESDIRECTOR

LISA CARLTONDIRECTOR

LISA HENSKEDIRECTOR

MARK CARROLLDIRECTOR

MARK SPOTTSTREASURER

JULIE BLUMDIRECTOR

PATROSKI LAWSONDIRECTOR

PAUL WAXLAXBOARD CHAIR

RICH GOLLUBDIRECTOR

SARA CHIEFFODIRECTOR

SHAFALI JESTEDIRECTOR

TANJALA GIPSONDIRECTOR

VANESSA VAZQUEZDIRECTOR

LAURA MARKSDIRECTOR

KRISTI LENGYELSECRETARY

ANDREW DUFFYDIRECTOR

JUIAN GANGOLLIDIRECTOR

JONATHAN GOLDSTEINDIRECTOR

JIM OHEIRDIRECTOR

JESSICA KREFTINGDIRECTOR

FRANCES BRIONESDIRECTOR

DEREK BAUERDIRECTOR

DAVID JOHNSTONDIRECTOR

DANIELLE CLARKDIRECTOR

CHIP BURKHALTERDIRECTOR

BRITTANY SMITHVICE CHAIR

BILL JOSEPHDIRECTOR

ANGELIQUE BORDEYDIRECTOR

ANDREW SPERLINGDIRECTOR

About this charity

Recognized since: January 1975
Location: 8737 COLESVILLE ROAD 400, SILVER SPRING, MD 20910
County: Montgomery
In care of: KARI L ROSBECK
Primary officer: KARI L ROSBECK, PRESIDENT & CEO

How to reach them

WebsiteVisit the charity’s website Emailinfo@tscalliance.org Phone(301) 562-9890

Filing and classification

Latest tax year: 2025
Tax period began: January 1, 2025
Return type: 990
Tax preparer: CALIBRE CPA GROUP PLLC
NTEE classification: Diseases, Disorders & Medical Disciplines (G030)
Grant-giving organization: Yes