DCIS UNDERSTOOD INC

What they do

THE ORGANIZATION OPERATES A SINGLE INTEGRATED PROGRAM THAT SERVES DCIS PATIENTS, THEIR FAMILIES, CLINICIANS, and THE GENERAL PUBLIC THROUGH THREE COORDINATED ACTIVITIES. EDUCATION: THE ORGANIZATION PUBLISHES FREE, EVIDENCE-BASED EDUCATIONAL CONTENT INCLUDING DIAGNOSIS EXPLAINERS, TREATMENT OVERVIEWS, FREQUENTLY ASKED QUESTIONS, and PLAIN-LANGUAGE SUMMARIES of EMERGING CLINICAL RESEARCH REVIEWED for ACCURACY BY A VOLUNTEER ADVISORY COUNCIL of BREAST ONCOLOGISTS, SURGEONS, and RESEARCHERS. ADVOCACY: THE ORGANIZATION RAISES PUBLIC AWARENESS of DCIS, PROMOTES INFORMED SHARED DECISION-MAKING BETWEEN PATIENTS and THEIR CLINICIANS, and WORKS to ELEVATE THE PATIENT VOICE IN RESEARCH and POLICY PRIORITIES. SUPPORT: THE ORGANIZATION PROVIDES COPING RESOURCES and CURATED REFERRALS to SUPPORT COMMUNITIES for INDIVIDUALS NAVIGATING A DCIS DIAGNOSIS. THESE ACTIVITIES ARE DELIVERED PRIMARILY THROUGH THE ORGANIZATIONS PUBLIC WEBSITE (DCISUNDERSTOOD.ORG) and THROUGH PARTNERSHIPS WITH CLINICIANS, RESEAR